苦尽甘来---世界上最好的DAN!医生：儿子生物疗法记录

语风妈妈

下面引用由kwenma2发表的内容：

另外很多朋友对鱼油不太清楚：一般ＤＨＡ高的，对小一点的孩子大脑发育比较好些；而ＥＰＡ较高则侧重在对肠道消炎方面较好。当然也要根据孩子脂肪酸测试结果来看如何侧重补。

K妈真的专业。
我也一直在给语风吃鱼油，目的侧重在肠道。也许是多种因素的作用，语风的肠道已经好多了。
继续学习，谢谢K妈。

guoqian

K妈,您经过5年多的努力，获得如此好成绩，真为你们高兴！您对大家耐心的解答和帮助非常令人感动，谢谢您在悄悄话里给了我这么多的帮助。这篇小K成长记录整理出来就准备作为我家孩子治疗和训练大纲。谢谢K妈！！衷心的祝福你们！！！

yitonglisa

下面引用由[U]kwenma2[/U]发表的内容：

谢谢ＬＩＳＡ的仔细观察和观察报告，如果能够通过这次的讨论让ＬＩＳＡ找出桐食物的可受性清单以及对其今后酵母菌的观察和控制方面有帮助，那我真的非常非常开心！

因为我知道，家长一旦明白了如何观察，怎么...

谢谢K妈的贡献。 我继续努力， 有好消息一定来与K妈分享！

柴火

小K妈的感谢信一定情真意切！不像我要是写点啥都干巴巴的，更别提英文的了。

cherry07

小K妈，我儿子晚上睡觉总是翻来翻去， 应该是消化不太好， 你能否推荐一种好的消化酶？谢谢。

kwenma2

下面引用由柴火发表的内容：

小K妈的感谢信一定情真意切！不像我要是写点啥都干巴巴的，更别提英文的了。

选了一段蹩脚的英文，见笑了：

As I said, we really appreciated your dedicated effort for K this year! We felt that we do not know how to express our appreciation to you :-)

you are the best teacher I have ever seen and the most important thing is that: you make K love you!!!

Without you, we can not imagine how K would be? You did everything you can even if very small things to support K, help him to grow up! Everyone can see how big changes K made, how much progress he made, how long the way he had this year, all of those are ----- because of you! Because of your great effort, support and your love!! Really!

"Thank you very very much!!" are those words coming from the bottom of our hearts!

You are retiring and we all wish you will have relax and wonderful retirement days , enjoying your times!

I really want to hug you and tell you that ----  you are the best!!

kwenma2

下面引用由cherry07发表的内容：

小K妈，我儿子晚上睡觉总是翻来翻去， 应该是消化不太好， 你能否推荐一种好的消化酶？谢谢。

这个要看他事什么时间翻来复去的。如果每天定点在半夜２－３点开始翻，可能跟十二指肠溃疡有关；如果是凌晨翻，可能跟泛酸有关；如果是睡着后就不断翻，也有可能跟泛酸有关，也有可能跟消化有关。

如果是你消化不太好, 可以试全酶，科克曼和休斯顿的品牌都有。

kwenma2

关于回宝贝贝妈妈的有关情绪行为问题的贴搬回家：

小K以前也是在学校不高兴，不愿意听话，老师一定要他那样做时，或者生气时就会scratch别人或者hit，而不是用语言。这个问题我们经历了两年，什么 ABA，地板时光都做了，不起根本性的作用。我想说，各个孩子不一样，也许你用了那些方法，有些效果，但是不会是根本性的。那一定是他的身体有问题。我后来发现他们这种情况事实上除了语言表达外，更重要的是他们有焦虑（anxiety）。所以当我用一些生理方面的方法帮助了他之后，这大半年小K是换了一个人。如果有身体的问题，生理的东西还是要生理解决，各个孩子有不同的问题。

在网上都有，比如钙，镁，维生素Ｄ，ＯＭＥＧＡ３，硒，维生素Ｅ，Ｃ等都应该有帮助。对小Ｋ，ＫＡＬ的钙镁合剂（钙，镁，维生素Ｄ），ＯＭＥＧＡ３，硒有帮助。帮助按照最大－>小的排列顺序：硒（他事实上缺硒，结果硒让他改头换面了），ＫＡＬ的钙镁合剂（钙，镁，维生素Ｄ），ＯＭＥＧＡ３（ＮＡＵＴＲＳＥＡ那个牌子）。另外你要好好观察，他是否有点ＯＣＤ，如果是，那么ＩＮＯＳＴＩＬ会
有帮助。还有其他的，根据情况处理。当然每个孩子的情况不一样，所以补充剂可能不一样。


另外告诉你，小Ｋ属于极少数用了西洋参焦虑加剧的人。正是一次偶然的应用西洋参之后的反应，让我意识到他这是焦虑(anxiety)的问题，从而让我一下恍然大悟，掌握了他的这个问题的本质。

要知道，一年半以前，他们学校的ＡＢＡ咨询师建议我们去看精神科医生，认为小Ｋ有那些问题。但我坚信小Ｋ本质是温存的！结果是因为他的身体缺乏一些必要的营养元素。有时候我真的很无语，精神病的帽子就是这样给孩子戴上的，行为问题也是这样赋予他们的。

他们真的很无助和可伶！

小城故事

这点我也完全同意。 中医的观点是autism and ADHD的小孩是阴虚火旺， 小城就是， 有段时间爸爸push得厉害， 他特别疲劳，内火大， 一天到晚莫名其妙的发火， 我后来坚持把公校以外的ABA停了， 让他好好吃好好睡， 少学习， 身体好了一些， 很多怪毛病也就没了。再结合上floor time, 比送到学校里进步得还快。

小K妈妈， 你怎么知道小K体内缺什么微量元素呢？ 是通过全面的血检吗？

宝贝贝

下面引用由[U]kwenma2[/U]发表的内容：

这个要看他事什么时间翻来复去的。如果每天定点在半夜２－３点开始翻，可能跟十二指肠溃疡有关；如果是凌晨翻，可能跟泛酸有关；如果是睡着后就不断翻，也有可能跟泛酸有关，也有可能跟消化有关。

如果是你消...

some foods also cause sleep issues. My son will get up in the middle of the night if he has berries (high phenolic), and bananas during the daytime.

宝贝贝

下面引用由[U]kwenma2[/U]发表的内容：

这个要看他事什么时间翻来复去的。如果每天定点在半夜２－３点开始翻，可能跟十二指肠溃疡有关；如果是凌晨翻，可能跟泛酸有关；如果是睡着后就不断翻，也有可能跟泛酸有关，也有可能跟消化有关。

如果是你消...

Your analysis of the causes is very nice.

kwenma2

小城故事：你可以通过DR。DATA试验室测试。

kwenma2

世界杯---与你同行

自从世界杯开始以来，每天晚上的睡前时间成了我和小K看当天世界杯比赛的时间。用iphone上面有分数，比赛安排，新闻，比赛录像等等。用这个小小的应用程序，它带领小K第一次进入了足球世界。告诉他分组，那个队厉害，如何打，足球术语。看录像时，我当解说员，拿出当年跟哥哥一起通宵看足球时学习的术语来进行生动的解说，让小K每天都岂盼看，喜欢看。其实我有一个目的，就是让他喜欢足球，这是我给他设计的热身赛，因为我已经给他报了秋季的足球班了。哈哈，小K又上妈妈的当啦！

柴火

下面引用由kwenma2发表的内容：

选了一段蹩脚的英文，见笑了：

As I said, we really appreciated your dedicated effort for K this year! We felt th...

小K妈冰雪聪明！俺没点透，你就把样板给送上来了。好的，等以后就照你的样板写了。

pastryjing

K妈不仅聪明而且善良而热心，有正义感，坚强，乐观。让人钦佩

宝贝贝

I moved questions here. Also can you give me some ideas about what lunch do you bring for K's lunch, and what marinade do you use for BBQ. Did you make it yourself? Recipe? Thanks a lot.

食物控制了（oxalate和phenol的问题），
Do you completely remove phenol and oxalate heavy foods or give no phenol with phenol foods? I was very strict with the foods for a long time and did not see much difference. Now I am thinking of giving him the foods together with no phenol to give him some fun. Food is a big motivator for him.Do you feel when you gave your son no phenol together with phnol heavy foods he is as good as when he did not have phenol food at all?  

Also how do you judge 肠胃道基本控制了? no behaviors or sleep issues? or some test?
I feel my son does not have big gut issues, He had reflux when he was younger but I did not see that problem for a long time. and his diet was very strict for a while, completely without foods he is intolerant of. I was diligent with the supplements too. But still I did not see much improvement.occasionally when I feel his yeast flared up, I do some yeast control protocol.this helped him a lot. Nice your son responds to the supplements so well.

kwenma2

你给他吃了，但是如果他肠胃不好，这些东西他不见得吸收了。另外补充剂的量也有不同。剂量不同，效果不同。你的剂量是否有问题？我说的这些是建立在肠胃道问题基本清除的条件下。如果你本来肠胃道问题还较严重，食物不耐受性很严重，那么这两个问题也能够造成他们狂躁。还有病毒也是。所以小K的情况恰恰是在肠胃道基本控制了，食物控制了（oxalate和phenol的问题），再来看就比较清晰了。

ricky

不知可否告知这个doctor的信息，谢谢！

kwenma2

下面引用由宝贝贝发表的内容：

I moved questions here.

Question: Also can you give me some ideas about what lunch do you bring for K's lunch,
Kwenma: Lunch is just as same as in home. they have microwave, so can heat for him.

Question: and what marinade do you use for BBQ. Did you make it yourself? Recipe? Thanks a lot.
Kwenma: I did not use marinade. For BBQ, now K can eat gluten-free sausage (you can buy in grocery store or wholefood) and also BBQ shrimp.

Question: 食物控制了（oxalate和phenol的问题），Do you completely remove phenol and oxalate heavy foods or give no phenol with phenol foods?  
Kwenma: I give him phenol-assistant always. but only remove the most phenol food. But now he can eat watermelon, blueberry, melon etc.. with phenol assistant. For oxalate, since I have vsl#3, biotion and selenium in place, the oxalate sounds not the problem for him now.


Question: Also how do you judge 肠胃道基本控制了? no behaviors or sleep issues? or some test?
Kwenma: from behavior, sleep, his poo-poo, his belly, etc.. also tests. But for daily life, just gauge from the symptoms.

宝贝贝

Kwenma: from behavior, sleep, his poo-poo, his belly, etc.. also tests.

For tests, do you mean according to the colonoscopy he doe not have duodenum problem any more? or Did you do any other test for general gastric and intestinal health? I was not aware of any other test, apart from colonoscopy. .