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苦尽甘来---世界上最好的DAN!医生:儿子生物疗法记录

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41#
 楼主| 发表于 2007-1-22 11:46:10 | 显示全部楼层

re:这几天儿子有一定的联想力和记性了。当我跟...

这几天儿子有一定的联想力和记性了。当我跟他玩发声照片时, 他看见照片上的玩
具鸭和玩具洋娃娃,便跑去拿我们家的实物玩具鸭和玩具洋娃娃来给我。当他看见
他爸爸穿了一件白衣服时,他说LORI穿白衣服(他的老师前几天恰巧穿了一件白衣服
)。当他看见地上铺了白雪时,说计算机的SNOWMAN。当我们从麦当劳回家时,他指
着身后说麦当劳,意思是才去了麦当劳。

另外今天惊奇地发现儿子居然能唱5首歌。虽然是跟着我唱而且口齿不清晰。
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42#
 楼主| 发表于 2007-1-23 00:48:14 | 显示全部楼层

re:接着说他的不足:最近大便依旧不好。眼神也...

接着说他的不足:最近大便依旧不好。眼神也不好。但是上课时的眼神还不错。他好
像喜欢上课了。

关于他的肠胃问题,上周去看了有名的Tim Buie 医生。准备给他作两项测试(其中
有一项是Dr. Wakefield 作的), 再决定如何处理。
http://www.autismndi.com/news/display.asp?content=Resources&shownews=20040728195163
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43#
 楼主| 发表于 2007-1-25 00:31:11 | 显示全部楼层

re:前天喝奶时,奶嘴放成小号的了。儿子喝了一...

前天喝奶时,奶嘴放成小号的了。儿子喝了一下,就拿给我们,说“妈妈X”。我们
没听懂最后那个字,於是认为肯定是他嫌奶冷,便去热了一下,再拿给他。他喝了
一口,又拿给我们,说同样的话。我说:“奶热热的!” 他说:“NO!”我们再仔
细一想,原来是奶嘴的型号错了。从这件事发现他还是有进步,他在发现有问题时
能主动向你提出,只是语言表达不来。(语言表达还要多教!) 以前他遇到同样的事
时,根本无反应,还是不断的吸奶直到大人发现他喝得特慢才发现问题。

他现在的固定行为较严重。主要表现在好多事别人不能作,非要妈妈作。如果妈妈
不在,就要爸爸作。如果爸爸也不在,才要婆婆作。。。总之有亲疏等级比较的观
念。

前天去家附近的健康俱乐部买了一年会员卡,准备经常带他去游泳。我们已经带他
去了几次了,他很喜欢。他属於那种不好动的类型,所以好不容易发现他有喜欢的
运动,立马化钱准备长期坚持带他运动。几次下来,在救生衣的帮助下他能向前游
十多米了,而且很高兴。游泳又能让他睡眠好,有食欲,又高兴,有表情,游泳时
又愿意跟你互动,锻炼他的肌肉,真是一举几得。但愿他不是只喜欢玩几天!

今天拿到了物理理疗(PHYSICALTHERAPY)的评估报告,说明他大肌肉运动能力差,平
衡力差,腹部肌肉,上臂肌肉差。星期一我们刚跟一个儿童物理理疗中心谈妥,准
备每周至少带他去一次,以后逐步增加次数。从二月份开始。

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44#
 楼主| 发表于 2007-1-25 00:43:48 | 显示全部楼层

re:从这周起,我们去掉了7。5小时的ABA换...

从这周起,我们去掉了7。5小时的ABA换来了5小时的地板时光。这两天地板时光的老
师来后,儿子跟她们互动很好。反观ABA课,儿子显得疲塌,无激情。可能有些厌倦
ABA的方式吧?或许喜欢年轻漂亮的老师(地板时光的老师就年轻漂亮, ABA的老师
较老)?他最喜欢他的一个语言老师DANA(年轻漂亮)。每次到中心去一看见那个老师
便DANA,DANA 地叫个不停,兴奋地主动去打招呼。喜欢之情溢于言表。下周一个新
的ABA老师来(顶替前一个ABA老师--生小孩去了),希望他喜欢。
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45#
 楼主| 发表于 2007-1-27 23:36:50 | 显示全部楼层

re:这几天孩子说话的确有进步。说话的品种多了...

这几天孩子说话的确有进步。说话的品种多了,话音清楚了一点。昨天我和他画画,
他主动说“妈妈 draw big eyes”。因为他发音不清晰,我没搞懂画什么。他看我不知道,便两只手指着自己的眼睛。原来是要我画大眼睛。
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46#
 楼主| 发表于 2007-1-31 02:06:53 | 显示全部楼层

re:SCD DIET 是指一种特殊碳水化合物...

SCD DIET 是指一种特殊碳水化合物饮食疗法。主要是不吃含大量碳水化合物的食物,
但可吃肉,大部分蔬菜,水果等。在网上:
http://www.breakingtheviciouscycle.info/legal/legal_illegal_a-c.htm
可查找哪种食物合格,哪种食物不合格。
它对於一些有某些肠胃道问题的ASD小孩特有效。因为只是限制饮食,所以无害,可
试用。在试用时要严格按照部骤,详细见:
http://www.pecanbread.com/foodprep.html
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47#
 楼主| 发表于 2007-1-31 03:43:31 | 显示全部楼层

re:儿子昨天去评估,恰巧去了之后他开始发烧。...

儿子昨天去评估,恰巧去了之后他开始发烧。整个人没精神,身体发软,医生想跟他
玩,他也没兴趣。没有互动。医生检查他身体时,他不愿意,一直说“ALL DONE”。
不过医生说感觉他的眼睛对视和语言有较大的进步。医生也意识到儿子不舒服。这
样下来,肯定还是AUTISM。听医生言外之意,如果儿子今天能有一些互动,那就会
是PDD-NOS。当然最近儿子的互动方面绝对不是今天这样。不过我们本来就知道他肯
定还是ASD,不管是AUTISM还是PDD-NOS。去医生那儿主要是想通过医生定出儿子在
上幼儿园后的干预计划,要求学校提供多少免费服务。医生建议学校提供每周25小
时的1对1的ABA(包括15小时的家庭ABA---老师到家来上课),3小时的语言课,3小时
的感统课,3小时的物理理疗。这对於我们跟学校交涉有很大的好处。因为上周我们
去看了一下学校,全天课(9:00-3:00), 只有1个半小时的一对一ABA, 其余是一
对一的活动或小组活动。学校申称他们全天的课都是用ABA的模式。但医生说对我儿
子来说需要真正的每天一对一ABA。据统计,如果每周进行40小时的一对一干预(主
要是ABA),小孩几年后有50%的可能性进入正常小学;如果每周进行30小时的一对一
干预,小孩几年后有30%的可能性进入正常小学;如果每周进行20小时的一对一干预,
小孩几年后有10%的可能性进入正常小学。所以高密度的一对一干预很重要。当然我
们还额外私人雇用老师做ABA和地板时光。

还好2月还要到另外一个医生那去评估。看他到时表现有无进步。

上周去做FLOORTIME,效果出奇地好。他自己发起活动,并且有很多互动,CIRCLE 数
很多,一个活动接一个活动(其中还有假扮游戏--给洋娃娃穿衣服),训练师大为高
兴。而且看得出他的MOTOR PLANNING 有一些起色,活动中带出了一点自己的感情,
能有一点解决问题(PROBLEM SOLVING)的能力了。

昨天晚上儿子发烧,我和他爸想给他量体温,他不愿意,我就自己先量,说妈妈量
后就该他了。等我假装量完后,将温度计给他,他说“爸爸量”。於是我们只得让
他爸量。等他爸假装量完后,将温度计给他,他说“爷爷量”。当时只有他,他爸
和我在场,於是我说“爷爷睡觉”。你猜他怎么说?他说“奶奶量”。我说“奶奶
睡觉。你量。”, 他说“NO 量”。整个过程让我体会到了他的思维过程以及与他
交流的乐趣。我真高兴!
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48#
 楼主| 发表于 2007-1-31 04:03:32 | 显示全部楼层

re:今天早上跟DAN!医生又咨询了一次。主要...

今天早上跟DAN!医生又咨询了一次。主要谈免疫测试结果。从测试来看,主要是儿
子肯定不能吃面食品(Gliadin is too high)。其次是IgG Immunoglobulins和 NK cell Activity指标不正常。所以医生叫做HBOT, 吃Pycnogenol (herb, suggest from clair lab
http://www.protherainc.com/prod/proddetail.asp?id=PYC6).主要针对提高免疫力,过敏和注意力。

另外SCD DIET 可进入第二步了。看SCD是否有效,至少让我们试2-3个月。
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49#
 楼主| 发表于 2007-2-3 01:07:20 | 显示全部楼层

re:明天和后天去参加两天的2007 AUTI...

明天和后天去参加两天的2007 AUTISM CONFERENCE,由Association for Behavior
Analysis International 主办。主题是行为疗法方面的进展与挑战。

The Association for Behavior Analysis International is sponsoring the 2007
Autism Conference, Progress and Challenges in the Behavioral Treatment of
Autism, to be held at the Sheraton Hotel in Boston on February 2-4, 2007.
Planned with the support of ABA International's Autism and Parent Professional
Partnership Special Interest Groups, this conference will expose providers
of home and school-based behavior analysis services, parents and family
members, caregivers, researchers, teacher trainers, and students to the
most current, scientifically validated information about behavior analysis
in autism treatment.

The single-track conference will feature 14 invited presentations by prominent
researchers and authorities on the treatment of autism and representatives
from the May Institute and the New England Center for Children (past SABA
Awardees for Enduring Programmatic Contributions to Behavior Analysis).
The conference will also provide a forum for over 170 autism researchers
to share their recent work in two poster sessions. The conference will close
with a Round Table discussion by representatives of ABA International's
organizational members. The conference will provide many opportunities for
personal exchange with researchers, presenters, and organizational members
of ABA International.
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50#
 楼主| 发表于 2007-2-6 02:06:33 | 显示全部楼层

re:非常感谢朱先生的主动热情的义务服务。这次...

非常感谢朱先生的主动热情的义务服务。这次两天的会议(ABA 主办方关于AUTISM 的主题
会)主要集中在对自闭症的关注,挑战以及如何在美国给ASD小孩提供更好的PROGRAM。
CARD (一个ASD SERVICE 机构提出的CURRICULM(ABA教案)很有吸引力。她们会在今
年出版。但会议上并没有详细的ABA技术讨论。我想这些会在ABA年会(五月在加州)上
更多。会议的资料将在稍后以EMAIL形式通知我们,然后我们可上网看。到时候我会
将CARD的SEMINAR SLIDES 发给朱先生。这次会议最后一个演讲者是Catherine Maurice,
她是ABA教案"Behavioral Intervention For Young Children with Autism: A Manual for Parents and Professionals"和“LET ME HEAR YOUR VOICE"的作者, 她的两个小孩在上17年前都被
诊断为ASD,但都康复了。
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51#
 楼主| 发表于 2007-2-7 06:15:46 | 显示全部楼层

re:Some friends asked m...

Some friends asked me to put this here because they can not access the website HTTP://WWW.PECANBREAD.COM I posted it before.
==========================================================================================
this is the info from the pecanbread about the SCD diet's intro step and the other stages.

Here's most info about the SCD siet.

As I do this for my son, even if some food is in this legal list, I still do not give to my son because he's allergic to it.

And I am not sure whether you can go to the websitewww.breakingtheviciouscycle.info/
to see which food is legal and which is illegal for SCD diet.

========================================================================================
Transitioning a Child to the SCD

Broadly speaking, there are two ways to go about this: cold turkey or gradual. What you choose depends on your child and your circumstances. However, regardless of what you decide, here are some tips that can make the transition a smooth one.

    * Attitude is key. Kids pick up on our lack of confidence, our nervousness, our uncertainty. Before beginning the diet, take a moment to get excited about what you are about to do. Believe, without question, that it will reap all the great rewards you have been hearing about. Do not think about how you are "depriving" your child, instead become enthusiastic for how you will be giving your child the gift of health. Accept that it might be hard at first, that your child might resist, but that you will stand firm and confident that this is the right road for you to take.

    * In most cases children adjust and accept the diet more easily if the whole house is SCD™ and there are no illegals to be had. In addition to eliminating the the risk of infraction, without any illegals available there is less chance that the child will go on a hunger strike hoping you will cave in.

    * Don't be surprised and alarmed if behaviours and stools get worse before they get better. Usually this is die-off, an indication that the diet is helping your child. If the stools and behaviours continue beyond 10 days consider possibilities other than die-off such as too much fruit.

    * Transitions and changes in routine are difficult for many ASD children. It could help to spend a few days (or a week, whatever is appropriate for your child) explaining the changes you will be making in their food choices beginning on a specified day. Again, convey a positive attitude about this. When that day comes, you should have the food selection look as enticing as possible.

    * For some children, it could help to explain why you are doing SCD™. If he/she has overt diarhea, mushy stools, or constipation, a simple explanation could be that this diet helps people's bellies feel better, or makes their poops healthy. For those without overt digestive problems, an explanation could be that the SCD is a healthy diet that the family is going to follow.

    * While many parents ultimately decide to keep their child on SCD™ indefinately, some children, when starting the diet, feel better if they know that they won't be giving up their beloved foods forever. You could explain that you are going to try this diet for X amount of time (3 months, 3 years etc.) and then you'll decide about whether or not to continue. (At which point many kids feel better and won't mind staying on it.)
      One mother made a 100-year timeline, assuming a 100-year lifespan, and showed what 2 years looks like. Then she explained that if they followed the diet for that tiny period of time, her son would gradually be able to eat more and more different foods. If they didn't do the diet, he would likely remain intolerant to many foods and would spend the rest of his life having to go everywhere with special foods.

    * Some parents have reported that, for hunger strikers, it helps to have as wide a variety of legal foods readily available. Eventually the child will choose something. The one thing to be careful of with this approach is that you don't keep offering your child a new food everytime he rejects something. This pattern might lead a child to believe that he can continue to hold out until you start offering illegals. It is best to, physically or verbally, lay out all their choices at one time.

    * Those familiar with ABA techniques have reported using a social or toy-based rewards system for encouraging their child to eat legal foods.

    * Those who have been previously using food-based rewards systems in ABA programs should phase those out prior to starting SCD™ in favor of non-food rewards.

    * It is well-known that there are few pre-manufactured legal foods. Consult elaineschildren or the recipe section of this website to find a good substitute for any pre-manufactured foods that your child will be giving up. For example, legal sausage can often be made up by a butcher or by following the recipe in Lucy's Cookbook. However, some kids initially find these substituted foods to be unacceptable. Attempting the switch only makes them upset or angry at the diet. For these children, it is best, obviously, to find entirely new foods that they will like.

From Elaine:

So often those first weeks are so very perplexing and worrisome. But when you think that you are giving the child what is probably the most nutritious diet in the world - the kind of food to which man's biological machinery is truly compatible with, and when you think that the entire world of trillions of microorganisms (bacteria and yeast) are undergoing dramatic transformations, hang in there, try not to worry (you are doing only good) and you will see the light at the end of the tunnel.



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52#
 楼主| 发表于 2007-2-7 06:16:55 | 显示全部楼层

re:Continue the SCD die...

Continue the SCD diet:
========================
ASD Intro Diet

Since the many of the children with ASD were casein free before beginning the SCD™, here is a list of suggested foods for the intro diet. The intro diet should be followed for 2-5 days.

Chicken broth
--Chicken broth with pureed cooked carrots
--Chicken broth with chunks of cooked chicken
--Chicken broth with cooked carrot sliced into little "coins"
--Chicken broth with "chicken balls" made from ground chicken
--Chicken broth with "noodles" made from beaten eggs cooked omelette-style into a "crepe" and then rolled up and thinly sliced
--Chicken egg-drop soup

Chicken pancakes
Roasted chicken

Roasted turkey

Beef broth
--Beef broth with meatballs made from ground beef

Hamburger patties

Eggs
--scrambled
--poached
--hard-boiled
--soft-boiled
--sunny side up
--deviled eggs made with homemade mayo

Homemade jello (made from unflavored real gelatin and purple and/or white grape juice)
Made in a shallow pan and cut with shaped cookie cutters or into cubes



Beyond the Intro Diet

This chart is a guide to introducing foods after the Intro Diet.
As with all things, individual tolerance to foods will vary.
This guide is to reinforce the need for gradual introduction of new foods into the diet.

   1. Never feed a child a food which has previously caused an anaphylactic reaction.

   2. Introduce new foods one at a time.
      This will make it possible determine whether each new food can be tolerated.

   3. This chart is based on the healing process that is taking place.
      It is not based on a timeline.
      Some people may be able to add new foods more quickly than others.

   4. This list of foods is not all inclusive.
      Please check BreakingTheViciousCycle.info for a list of legal/illegal foods.

   5. Oil/butter may be used to prevent sticking when preparing pancakes.
      Oil/butter may be used in any recipe that calls for it.
      Oil/butter can also be used when cooking meat or vegetables.

      The suggestion to avoid frying foods early in the diet was made due the difficulty
      that kids on our list were having with deep fried foods.


* Note: For those with strictures (narrowed ileums) certain foods may aggravate the narrowed portions of the ileum.
These foods include raw grapes, lots of raisins, spaghetti squash, celery, vegetable and fruit peels, whole nuts (nut flour or nut butter seems to be okay). Please also see Obstructions and Resections from Elaine's website.

Again, this chart was created in an effort to help parents remember to introduce foods slowly and feed only well-tolerated foods.


Stage 1

FRUITS
Peeled, deseeded & well cooked
Apple
(applesauce)
Pear
(pearsauce)
Raw
Banana
(very ripe with spots)

VEGETABLES
Peeled, deseeded & well cooked
Carrot
Green Beans
(Especially French Cut )
Spinach
Zucchini
       
MEATS
Boiled/Broiled        

EGGS
Any Style
       
Stage 2

FRUITS
Peeled, deseeded & well cooked

Apricot
Peach
Pineapple
Plum
Tomato

Raw
Avocado

VEGETABLES
Peeled, deseeded & well cooked

Acorn Squash
Artichoke-french
Asparagus
Buttercup Squash
Butternut Squash
Cucumber
Garlic
Mushroom
Peppers
Pumpkin
Watercress

MEATS:Baked

NUTS: Nut Butters, Nut Milk

Stage 3

FRUITS
Peeled, deseeded & well cooked

Blueberry
Blackberry
Cherry
Date
Elderberry
Fig
Gooseberry
Kumquat
Passion Fruit
Raisin
Strawberry

VEGETABLES
Peeled
(as appropriate),
& cooked

Beet
Bok Choy
Broccoli
Brussels Sprouts
Cabbage
Cauliflower
Celeriac
Celery*(see note)
Chinese Cabbage
Collards
Eggplant
Kale
Leek
Lettuce
Lima Beans-Fresh
Olive
Onion
Parsley
Pea
Peppers
Rhubarb
Shallots
Snow Peas
Spaghetti Squash*
Sugar Snap Peas
Swiss Chard
Watercress

MEATS:Pan Fried        
NUTS:Nut Flour


Stage 4

FRUITS
Raw, peeled
* (see note above the chart)

Apple
Apricot
Canteloupe
Elderberry
Grapefruit
Grapes* (see note)
Kiwi Fruit
Kumquat
Lemon
Lime
Mango
Orange
Papaya
Passion Fruit
Peach
Pear
Persimmon
Pineapple
Pomegranate
Plum
Tangerine
Tomato
Watermelon

VEGETABLES
Raw

Bok Choy
Broccoli
Cabbage
Carrot
Cauliflower
Celeriac
Celery
Chinese Cabbage
Collard
Cucumber
Daikon Radish
Kale
Leek
Lettuce
Mushroom
Olive
Onion
Peppers
Radish
Rhubarb
Shallots
Snow Peas
Sugar Snap Peas
Spinach
Swiss Chard
Watercress
       
MEATS
Battered/Deep Fried

BEANS
Cooked
(prepared according to BTVC)

Haricot Beans
Lentils
Lima Beans
Navy Beans
Split Peas
       
Stage 5

FRUITS
Raw

Apple
Apricot
Blueberry
Blackberry
Cherry
Date
Elderberry
Fig
Gooseberry
Grapes
Olive
Peach
Pear
Persimmon
Plum
Raisin
Strawberry
Tomato

MEATS
Dried Jerky       
       
NUTS
Whole Nuts
       
BEANS
Cooked
(prepared according to BTVC)

Black beans
Kidney Beans

---------------------------------------------------------------------
Sample Menu

Breakfast ideas:

Banana pancakes
Pear pancakes
Butternut squash pancakes
Nut butter pancakes
Nut butter cake/muffins
Scrambled or boiled eggs
Dairy free smoothies
Pear sauce


        Lunch and Dinner ideas:

Broiled hamburger patty
Baked Chicken
Chicken Pancakes
Sneaky muffins with chicken w/o flour
Chicken carrot soup
Well steamed carrots, pureed if preferred
Mashed butternut squash
Squash French fries
Carrot curls/chips
Egg pizza
        Snack ideas:

Nut butter cake w/o flour
Pear sauce
Apple sauce
Ripe bananas
Squash French fries
Carrot curls/chips
Nut butter muffins
Boiled eggs
Dairy free smoothie



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53#
 楼主| 发表于 2007-2-7 06:18:15 | 显示全部楼层

re:Top 10 SCD FAQs...

Top 10 SCD FAQs


What is the Specific Carbohydrate Diet™?

The Specific Carbohydrate Diet ™ is a scientific diet based on chemistry, biology and clinical studies. It is detailed in the book, Breaking the Vicious Cycle, written by Elaine Gottschall, M.Sc..

The selection of foods that are allowed on the Specific Carbohydrate Diet ™ is based on the chemical structure of these foods. Carbohydrates are classified by their molecular structure. The allowed carbohydrates have a molecular structure that is small enough to be transported across the surface of the small intestine into the blood stream. These carbohydrates do not need to be broken down by various processes of the digestive organs such as the pancreas or the intestinal cell surface enzymes.

The Specific Carbohydrate Diet ™ was very successfully clinically tested for over 50 years by Dr. Haas and biochemist Elaine Gottschall.

The Specific Carbohydrate Diet ™ was designed for patients with intestinal diseases, but has been "found" by parents of children with autism. The kids on the diet are doing very well.

In order to effectively implement the Specific Carbohyrdate Diet ™, it is necessary to read Breaking the Vicious Cycle. The diet is not merely one of substituting one group of foods for another. The diet begins with a limited number of foods and gradually adds more foods as the intestinal tract heals.


How does the SCD ™ work?

When the diseased intestines are inflamed from the effects of dysbiosis, they cannot break down the molecules that are too large to be transported across the small intestinal surface into the bloostream. Instead of entering the bloodstream, the undigested starch and sugar molecules serve as a continual source of food for bacteria and fungi. The premise of the SCD ™ is to remove all sources of carbohydrates whose molecular structure is too large for direct entry into the bloodstream. By removing starches and sugars, dysbiosis is corrected. The result is a decrease in intestinal inflammation and healing of the intestinal tract.


Can a child remain Gluten Free and Casein Free while following the SCD ™?

The SCD ™ was originally developed as a diet for celiac disease. The SCD ™ is completely gluten free. Dr. Haas, the doctor who pioneered the SCD ™, spent many years investigating which foods people with celiac disease could tolerate. He found that they could tolerate lactose-free dairy products. So, certain dairy products, such as properly prepared homemade yogurt, are allowed on the SCD. However, some of the parents of children with ASD are reluctant to try any kind of dairy products and avoid them even though they are lactose free. There are children who remain strictly casein free while following the SCD ™ and still comsume a well-balanced diet packed with needed nutrients.

The parents who decided to try the homemade goat milk yogurt were surprised by the dramatic improvement seen in their children. Yogurt is a remarkably healing food. The decision to try the homemade goat yogurt remains completely up to the parents.


Where do I find an SCD™ cookbook that is casein free?

There is an SCD™ cookbook called SCD with Taste and Tradition that contains mostly dairy free recipes. There are more than 150 recipes in the book. Only about 12 recipes contain dairy products and they are in a separate section of the cookbook. The cookbook can be ordered from Digestive Wellness. Telephone (845) 356-4557.

Also, there are many dairy-free SCD recipes on this website.


Why is the SCD™ a good choice for a child with ASD?

Gluten sensitivity and intolerance to salicylates are symptoms of a damaged digestive system which is overrun with intestinal pathogens. When the health of the gut is restored, these symptoms disappear. It is better to cure the underlying cause than to just try to treat the symptoms. Because SCD™ reaches to the root cause of these problems by restoring the helath of the digestive system, the Specific Carbohydrate Diet™ is the optimal choice for a child with ASD.
For a more detailed explanation of why the SCD™ is the optimal choice for children with ASD, click here.


What is the protocol for implementing the SCD™ for a child with ASD?

The Elaine's Children ASD/SCD™ Protocol

   1. Serve only food that is allowed on the diet. Use only foods that the child can tolerate and digest.
      When initially starting the diet, many children cannot tolerate all of the SCD legal foods. Carefully introduce permitted foods one at a time to determine if the child can tolerate the food. Add new foods slowly. A food journal is very helpful to determine if there are any reactions to new foods. Following the intro diet even for a day or two yields better long term results.

      Keep in mind that as the yeast and bacteria begin to die off, there may be an initial bad reaction to the diet.

      NEVER give a child a food which has previously caused an anaphylactic reaction.

   2. Use probiotics and/or homemade goat yogurt.

      Probiotics should be introduced slowly, gradually building up the amount given. This helps prevent die-off from happening too quickly.
      Implement a dairy-free SCD™ for at least several weeks prior to the introduction of the homemade goat yogurt. This gives the gut a chance to heal. This period of time may need to be longer if there are dietary infractions. 100% compliance is necessary. When the SCD™ is started, there may be an initial bad reaction in some children due to microbial die-off. So, waiting for a few weeks before introducing the yogurt makes it possible to determine the source of the bad reaction. Keep in mind that the only yogurt that is allowed is properly prepared homemade yogurt. The yogurt should also be introduced slowly, beginning with 1 TBL per day and gradually working up to 1-2 cups per day for a child. If the yogurt is introduced too quickly, there could be a significant die-off reaction.
      For complete directions on how to make homemade goat yogurt, click here.

      Non-dairy yogurt starter and non-dairy acidophilus can be purchased from Custom Probiotics.

   3. Use SCD™ legal vitamins such as Freeda (as mentioned in BTVC) or another legal brand (see Supplements page).

   4. If there are still digestion problems, consider using SCD legal enzymes (see Supplements page).

   5. B12 shots can also be quite helpful when dealing with intestinal problems.



Where can a complete list of legal/illegal foods based on the SCD™ be found?

Go to Elaine Gottschall's Breaking the Vicious Cycle website. The legal/illegal list can be found there as well as an enormous amount of helpful information about the SCD™.


Where can a list of legal supplements be found?

Go to SCD™ Supplement List. This list is kept as up-to-date as possible.


What online support groups exist for parents of children with ASD?


There is a Yahoo Group Pecanbread, which is a support group for parents of children following the SCD™. The majority of the children on the list have ASD, but not all. Some have GI problems, seizures or serious food allergies. It is a very supportive group made up of parents of children following the SCD.

For information on how to join the Yahoo Group Pecanbread, please click here.

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54#
 楼主| 发表于 2007-2-7 06:19:29 | 显示全部楼层

re:TOP 10 FAQ of SCD DI...

TOP 10 FAQ of SCD DIET (continued)

Where can SCD recipes and products be found?

Breaking the Vicious Cycle by Elaine Gottschall contains many recipes.

A compilation of recipes from members of various SCD Groups can be found at:
SCDRecipe.com

Mike Simon has a running daily "Flog" (food log) on his site as well as recipes:
Glassbird.com

The Upper Canada Lower Bowel Society (UCLBS) webpage.
UCLBS.org

Recipes from the SCD™ Organization Web Library can be accessed at:
SCDiet.org

Pictures of some fun SCD™ kid-friendly foods along with the recipes can be found at:
SCD Kid's Foods

Lucy Rosset's Book is profiled in Breaking the Vicious Cycle.
Lucy has a kitchen shop with many helpful items for following the SCD Diet.
Lucy's Kitchen Shop

Rochel Weiss's cookbook is called SCD with Taste & Tradition.
Her cookbook and other SCD™ items can be ordered from:
Digestive Wellness

J-Gourmet ready-made SCD™ products are available in Southern Ontario, Canada.
J-Gourmet
Overcoming Difficulties



Topics:

Chelation issues
Child consumed something illegal
Child is allergic (anaphylaxis) to nuts
Child is an extremely picky eater
Child is sensitive to phenols
Child is responding negatively to SCD™ or is not making any progress
Child still shows signs of malabsorption
Child takes illegal medication that has no legal version
Child won't eat foods on intro diet
Report Problems with SCD™
SCD™ Counselors to help with difficulties
School parties and other social events
Unsupportive family members and school staff



Chelation issues

We believe that the SCD™ is the best diet to follow to keep bacteria and yeast overgrowth under control.
It is well-known fact that chelating agents such as DMSA and ALA create or worsen bacterial and/or yeast overgrowths. We cannot guarantee the same degree of success with controling yeast and bacteria if a child is undergoing chelation.
Any medical treatment is a choice that must be made by the parent and the child's health care provider.
Parents need to know that by administering agents which contribute to bacterial and yeast overgrowths, that the bacteria and yeast may NOT be able to be controlled by the SCD™ alone.


Back to topics

Child consumed something illegal

It happens to the best of us. If the child regresses, go back to a more basic diet for a few days.

Sometimes a parent is giving child an illegal food by mistake. Double check the legality of the foods on this website: Breaking the Vicious Cycle.

If the child is sneaking illegal foods, investigate and try to eliminate any chance for infractions. Put the cat food up. Attempt to get any illegals out of reach, out of sight or completely out of the house. Even the school bus driver can be giving your child snacks without your knowledge. It is imperative that you have the support of anyone your child comes in regular contact with, including teachers, babysitters, and family members.

Back to topics

Child is allergic (anaphylaxis) to nuts

IMPORTANT: Foods that that cause an anaphylactic reaction (severe allergic reaction), should permanently be eliminated from the diet.

Elaine writes: “Some of the allergy testing is far from accurate. However, if you have ever had an anaphylactic reaction to a nut or another food, stay away from it forever and ever.”

It is recommended that any food the child has had a severe reaction to should be avoided.

For those who can't do any nuts, there are still many options that can be enjoyed with meat, veggies, fruit and SCD™-legal dairy. Nuts are not an essential part of this diet. The SCD™ without the use of nuts is still a very healthy diet.
Some very creative moms have come up with recipes for pancakes and cupcakes that do not use any type of flour.

Back to topics

Child is an extremely picky eater

Sometimes kids are picky because they are self-limited to foods that harm them. Sometimes kids are picky because they want sameness and routine. Sometimes kids are picky for sensory reasons. Sometimes kids are picky for who knows what reason. The good news is that plenty of picky eaters have survived and thrived on SCD™. And, even better news, some parents of picky eaters report that their children become much more adventerous after some time on SCD™. As the gut heals, cravings for harmful foods should fade and sensory issues often--though not always--fade.

Here are some tips for parents of picky eaters:

    * For children who refuse all SCD™-legal foods, see the pecanbread section entitled "Transitioning a Child to SCD™" under the heading "Food Prep."

    * Veggies can be hidden. The easiest to disguise are zucchini, yellow squash, and cauliflower (especially mashed and pureed.) These can be used in muffins and SCD™-legal lasagne and breads, to name a few. Some have even used baked pureed squash in muffins as a binder replacement for eggs. Greens are trickier but workable, especially in meat dishes like meat balls. Spinach chopped really, really small can look like spice--for the picky child who is not offended by spice. Creativity is the name of this game.

    * Go through all the SCD™ recipes you can find. Some overtly veggie-based recipes, like squash fries, are kid favorites.

    * Some parents have used ABA techniques to encourage eating new foods. For example, every new food eaten gets a reward. And maybe that reward could be a desired SCD™-legal food.

    * Some parents have used the method of allowing one bite of a preferred food in exchange for one bite of a less preferred food.

    * Parents of kids with sensory issues have successfully gotten their kids to eat veggies inn the following ways:

          o Pureeing a veggie into babyfood consistency.
          o Steaming miscellaneous veggies then pureeing them with salt and water to create a homemade "V8".
          o Using a turkey baster to drop a little bit of a pureed veggie into their child's mouth. The parent who used this method reported that it took a long time before it got easy. Sometimes her daughter would take only a bite then quit. Patience, patience, patience.....

    * In general, with sensory-picky-eaters, parents need to experiment with different textures (though pureed seems to be a favorite), colors and smells. One mother reported that she herself is nauseated the color orange. Play detective: try to find consistencies in what your child gravitates to and what they recoil from.

    * Sometimes a Sensory Integration Occupational Therapist can help with feeding challenges.

    * Cook a food you want your child to have in as many different ways as possible. Ground beef, for example, can be burgers, meatloaf, a pizza topping etc.

    * In homes where the entire family is follwing the SCD™, some picky eaters eventually come around when they repeatedly see a particular food enjoyed by everybody else. Reverse psychology often works well in this situation: don't care one bit whether or not your child joins in. The food is for everybody else, not your picky eater.

In general, we cannot control what our children put in their mouths, chew and swallow. And we don't want to be forcing anything in. But we can, for the most part, control what they don't put in their mouths. On close inspection, you might find that, eating SCD™, your confirmed picky eater is taking in a more balanced diet than you thought.

For a behavioral approach to getting your picky eater to try new foods, please read this article from TACA (Talk About Curing Autism): Picky Kids, Eating, And Autism Creative ways for healthy nutrition by Lisa Ackerman.



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55#
 楼主| 发表于 2007-2-7 06:20:09 | 显示全部楼层

re:Child is sensitive t...

Child is sensitive to phenols

Many parents report that their children have problems with foods that are high in phenols. Parents report the need to follow the Feingold diet. The Feingold diet protocol removes foods high in salicylates. After a period of 4-6 weeks, the non-artificial foods (fruits and vegetables) should be able to be added back into the diet. This does not seem to be the case for ASD kids who follow the Feingold diet. The foods are not able to be reintroduced as the protocol suggests.
The underlying problem with phenol sensitivity seen in kids with ASD may very well be leaky gut syndrome. It has been seen numerous times that once kids follow the SCD™ and their GI tracts begin to heal, they are able to eat phenolic foods that were previously not tolerated.
When beginning the SCD™, it is not required to eat the foods that are high in phenols, but in time, it may be possible to resume eating the foods that are high in phenols with no negative reactions.
A child may also benefit from using an enzyme such as No Fenol to help with highly phenolic foods.

Back to topics

Child is responding negatively to SCD or is not making any progress

It is not unusual for kids to have some negative reactions at first as bacterial overgrowth and yeast “die off”, releasing toxins. This could manifest itself as behavioral symptoms (stimming, tantrums, etc.) or physical symptoms such as nausea, headache, or even fever. Give child lots of love during this difficult time. Try epsom salt baths and activated charcoal supplements. Check out the Initial bad reactions link for more details.

Keeping a food journal often helps determine if certain legal foods are not tolerated. Until some gut healing takes place, some of the SCD™ legal foods may need to be avoided. If this is the case there are often legal substitutes available. Examples: For those that don't tolerate almond flour, there is pecan or filbert flour. For those children that don't tolerate eggs at the beginning there are egg-free recipes (see Food Preparation page). Manufactured foods that have not been listed as legal either in BTVC or on Elaine’s website: Breaking the Vicious Cycle could possibly have illegal ingredients and might be interfering with progress. Double check all the products you are using. If you are not seeing as much improvement as you were hoping to, please pull all possible illegals for a time and see if that makes a difference.

Also, take a close look at the supplements your child is receiving. There may be illegal ingredients which are causing problems. Please check the SCD™ Supplement List to see if you can find a suitable legal supplement to replace any illegal ones your child might be currently taking.

Back to topics

Child still shows signs of malabsorption

If you suspect continuing malabsorbtion issues (undigested food in stools, etc.), your child may benefit from digestive enzyme supplements.

Some legal enzymes by brand name:

Peptizyde by Houston Nutraceuticals, Inc.
No Fenol by Houston Nutraceuticals, Inc.
H N-Zyme Prime by Houston Nutraceuticals, Inc.

Digest Gold by Enzymedica
Ultra-zyme Plus by Thorp Nutrition
Vitase Digestion Formula

EnZymAid by Kirkman Labs
Enzym-Complete/DPP IV by Kirkman Labs
Multi-Enzyme Formula by Kirkman Labs
Peptidase Complete by Kirkman Labs

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Child takes illegal medication that has no legal version

If your child is taking prescription medication that contains illegals, first check with your pharmacist to find out if the med might possibly be available in another form that might be legal. Some medications can be specially compounded. If not, and the medication is essential, continue giving it and simply do the best you can in every other aspect of the diet. You may find that some prescriptions, such as antacids or laxatives, may no longer be needed once the child is on SCD™ but this decision is up to you and your physician. Do not attempt to stop any medication for seizures or for mood or behavior disorders without discussing the preferred protocol for weaning the drug with your child’s doctor.

Back to topics

Child won't eat foods on intro diet

Think like a kid for the intro. Here’s a few suggestions:
For the homemade gelatin - cut it into kid shapes.
If he/she won't eat eggs you could mix them, cook them flat & then cut them into more shapes.
Try apple cider or grape juice (1/2 juice, 1/2 water) frozen into popsicles.
The broiled beef patty can instead be rolled into little kid-size meatballs.

Unless symptoms are severe (cramping and diarrhea), one or two days on the intro diet are sufficient. If your child refuses to eat the intro diet foods, simply do the best you can to provide a very simple diet of easily digestible SCD™ legal foods. Get as close as you can to the intro diet with just a few basic foods you know your child can tolerate and will eat. After that, introduce new foods slowly. You may be able to return to a stricter intro diet later for a day or two to jump-start further progress.

Back to topics

Report Problems with SCD

If you are having problems with SCD™, please go to the Problem Report Form. Follow the directions on the page to submit the report.

Back to topics

SCD™ Counselors to help with difficulties

If you are interested in a private SCD™ Counselor to help with difficulties, please contact the webmaster to obtain a list of private counselors.

Back to topics

School parties and other social events

These events are most difficult to deal with during the beginning stages of the diet. Once nut flours and baked good can be well tolerated, there are many options for providing yummy treats for these occasions. There are recipes for cookies, cakes and other treats on the Food Preparation page.

Some suggestions for fun treats that do not contain nuts would be: homemade gelatin cut into shapes with cookie cutters, homemade popsicles, and fruit salad.

Back to topics

Unsupportive family members and school staff

Sharing a brief overview of the science behind the SCD™ and a list of legal/illegal foods could help gain the support of family and school staff. Oftentimes people are more willing to be cooperative with special dietary restrictions when they understand that there is a real reason for the diet.
A copy of the SCD Autism Summary could be printed out and shared with family members and school staff.

Back to topics

Pecanbread.com


Initial Bad Reactions to the SCD

Elaine writes: "There is no way that we can judge how beneficial this diet will be during the first few days. Some children do well even the first week, but others will go through a period of adjustment and what some call "detoxification". Please remember that this diet is creating PROFOUND CHANGES in the intestines. It is readjusting the entire population of yeast and bacteria beyond what anyone understands fully at this time. But the results have been excellent and that is what SCD is about: Results."
"During the first week or so, it often happens that things look a bit worse. What frightens many moms and dads is that the color of the stool can become bizarre shades of green and yellow. This color change is a good sign: bacterial metabolism is CHANGING. The change is affecting the bile salts and therefore affects the color of the stool."

These inital reactions may include a worsening of behavior, GI symptoms and mood swings. Some children experience and increase in the size of their bellies. There might also be an increase in "stimming", hyperactivity or agression. This is an indication that the diet is beginning to work and there is a "die off" reaction taking place.


If my child does not have a bad initial reaction to the diet, will he still see results with this diet?

Many times, children show no initial bad reaction, yet see great results. Some children show immediate positive results. Every child is different.


My child is GFCFSF and sugar free. Could my child still have an initial bad reaction to the SCD?

It is possible because rice and potatoes supply plenty of food for the bad microbes (yeast/bacteria).


How can I make my child feel better during the die off period?

Give lots of love.

Activated charcoal for a brief time. It should not be taken with meals.

Epsom salt baths have helped relieve some symptoms of die off for some children.
Start with 1 cup of epsom salts in waist deep water and soak for at least 20 minutes.
If this is tolerated go up to 2 cps of slats per bath.
If this is not well tolerated, cut the amount to 1/2 cup per bath or even less.
Find the amount that can be tolerated. Hyperness, irritability, and/or whining can indicate that a person is detoxing too fast.


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56#
 楼主| 发表于 2007-2-7 06:25:57 | 显示全部楼层

re:实在对不起,只有英语版本的SCD饮食疗法...

实在对不起,只有英语版本的SCD饮食疗法。如果哪位热心家长能翻译出来,还有
http://www.breakingtheviciouscycle.info/
上的合格和不合格的食物,那么会填补中文关于SCD疗法的空白(我没看见过SCD的中文
版本介绍。如果有,那更好。也可以将它贴出来)。
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57#
 楼主| 发表于 2007-2-9 00:44:31 | 显示全部楼层

re:儿子从星期一开始眼睛放光,有神。对视也好...

儿子从星期一开始眼睛放光,有神。对视也好些了。但他玩时还是太专注于自己的活
动。最近一周可以认识大概10个英语单词了。而且还要将单词拼出来。开始喜欢按
照虚线描绘的数字填写数字,希望这是他开始写字的第一步。到目前为止,可以说
出家里8个人的名字了(问答形:“爸爸叫什么?”, 答:“MM”), 数数可以数到
30 。

最近一周开始在家里作音乐听觉统合训练。用的是“Listenning with the whole body ”的方法。
特殊的耳机和CD碟子。for details:
http://www.vitallinks.net/
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58#
 楼主| 发表于 2007-2-14 01:06:05 | 显示全部楼层

re:这一周以来, 小孩变得听话多了。...

这一周以来, 小孩变得听话多了。

去超市购物,看见他走出几米远后,我说“爸爸妈妈要回家了!”,他立马就跑回
来牵着我们的手;

从来给他剪头是个大难题, 只能等他睡着后用剪刀给他剪。周末如法炮制。不想刚
剪了一半, 他醒了,把我们吓得一身汗。这下完了,整个一个阴阳头。于是我试着
说:“不动,妈妈剪头”。剪下一点头发就给他看,就这样他一动不动地让我完成
了任务。然后拿镜子给他看,说“剃了一个小光头”,教他摸摸头。过了一会,奶
奶过来,我说剃了一个小光头,没想到他还像模像样地摸了摸头。

一个月前,他开始让我给他剪指甲了。以前是碰都碰不得,只好在他睡觉时剪。现
在还可用剪指甲的机会跟他地板时光一把。

周末去看医生,医生要号脉,开始不太愿意,经我说了后也就同意了。医生至少在
他每只手上号了20秒,他都耐心等着。医生问他几岁了,他说“两岁”。医生问他
叫什么名字,他也说对了,还接着拼出了单词。把我们都逗乐了。我们一个多小时
都跟医生谈话,他虽然说了几次“坐爸爸车车回家”, 但我说“等一会”他也没有
烦躁,耐心地等我们(有时玩一下医生办公室的玩具)。医生都说他很乖,能有耐心
配合我们了。

最令我高兴的是前天我看见了一种我从来没在他脸上看见的表情。他想看DORA 的DVD,
就跑到架子上拿了一张DVD,於是我问他是不是DORA, 他侧过头来看着我,眼睛流
露出一种复杂的表情:高兴,但又好像在问“妈妈,你说呢?”,而且还有“你说
错了”的表情,然后他笑着跑过来对我说“ELMO”。原来是另外一张DVD。总之我第
一次感觉到了他的调皮的神情。

昨天晚上我去开会,10点半才到家。平时都是我哄他入睡。昨天临时换成爸爸。据
他爸爸说,他躺在床上,用一种有点委屈的又有点想哭的声调说“坐爸爸车车接妈
妈”。看来他开始知道想妈妈了!他爸爸说上次我去开地板时光的年会,走了好几
天他也没有任何感觉。相比起来,是有一些进步了。今天早上一见我,高兴的拥抱
我,抱玩了一个后,又主动拥抱了一次。可见他好高兴!

另外觉得你问他问题时,他的反应快些了。

在这7-8天中,只有一个晚上和第二天上午眼神变得呆。其它时候的眼神是闪光发亮。
我怀疑是如下原因:星期四下午我带他去做地板时光,进那栋楼时很大一股油漆味,
原来是一家公司在装修。冬天窗子又闭着,所以气味透不出去。晚上回来他就有点
呆,第二天上午更呆。下午才好转。我不知道这是不是巧合?他反应这么强烈!他
的食物我们没有变动。如果是,家长们一定注意不要让孩子离得太近!


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59#
 楼主| 发表于 2007-3-6 22:38:33 | 显示全部楼层

re:最近两周忙於孩子的胃肠(endosc...


最近两周忙於孩子的胃肠(endoscopy & colonscopy)测试,先是停消化酶,
然后又停了两天所有的药,饿肚清肠(半天只喝果汁)一天,于二月二十二
号作了测试。当天初步结果有十二指肠溃疡。
结果令人吃惊!全面结果过两周才能出来。

最近有一周(在停消化酶)前眼光发亮,状态极佳。停消化酶后眼神趋於一般。测试
这几天状态不太好(注意力不好,眼神不好)。当然跟测试和抽血有关。经过几天的
恢复,上课有好多了,至少恢复到测试前的水准。但还是没有最佳状态。

不过这两周语言也还有进步。

最近喜欢吃兰瓜,那天吃完后,居然端起碗,站在自己的板凳上说“我要吃兰瓜!”。
孩子从来对吃的没有任何兴趣,你给他吃啥就吃啥,从来不主动要吃的。从这点说
就很有进步。还有一天自己吃完了还跑到大人的菜盘子里主动挑花菜吃。不断说
“MORE PLEASE”。

前些天突然对他的小三轮车感兴趣,在家里骑着骑着,便想骑上楼。我便告诉他BIKE不
能上楼,你该上楼洗澡了。他恋恋不舍地跟我上楼,正好看见爸爸也上楼,於是他
说“爸爸下楼”。 我们不知他要爸爸干什么,於是爸爸下楼。他马上说“爸爸拿BIKE!”
啊,原来如此!看来小脑壳还在动。

前天语言老师上课用了彩笔,他很喜欢。上课时主动说“I WANT PURPLE MARKER!”
该老师一周没来,直说他说话有进步。老师来时,他高兴的不得了,早早地在窗子
边等,直到老师进门,很高兴给老师打招呼“HI DAINE”。然后我悄悄告诉他给老
师放好凳子,他咚咚地跑过去给老师放好凳子,老师好高兴。

当天晚上,他拿着家里的MARKER在纸上涂鸦,我在跟他爸爸说话,突然他叫我“妈
妈,一五”,他看着我笑(有一种得意的神情),手指着纸,我“哇”的一声尖叫出
来。原来他自己第一次写出了“15”的阿拉伯数字!於是赶紧教他写“2” “3”,
一下就学会自己写了。以前只是让他连点组成的阿拉伯数字。到睡觉时已能独立写
“1”“2”“3”“5”“8”了。

昨天去一个新的语言老师家,也叫DIANE。DIANE有20多年跟ASD小孩打交道的经验。
她不仅是语言专家,ABA和FLOORTIME她也通。总之感觉她专业素质很强,比起目前
我们的其它4个语言老师而言,综合素质加经验数第一。她一开始就不断的测试孩子,
想看看他的水平。跟孩子玩完后,我立马叫老公跟她约长期的服务。最近几个月的
经验告诉我,要找到一个好的老师太难了,有就一定要抓紧。虽然她费用高$100USD/每
小时。好在我们有好的保险,能报70%。孩子和她的时间安排都很紧,所以很难找到
合适的时间。她初步答应周日提供1小时语言训练。
她说我们孩子属於高功能,有较强的模仿力(也就最近我发现你说啥,小孩愿意跟你
说,而且反应快),能说很多东西(各种形状,颜色,动物。。。), 而且关键是功
能性语言(去了不高兴,指着门直叫“MOMMY OPEN DOOR”。 遇到困难便说“MOMMY
HELP ME”)好,而且孩子SMART。所以她愿意开个例外,周末给孩子上课。当然她指
出孩子的弱点:玩东西太专注于物体,需要老师插入才能将注意力转移过来,眼神
对视要改进,等等。我觉得她说到我心里去了,抓问题很准。看来是经验丰富。

孩子现在一周有40多个小时的个训(ABA 25小时, 地板时光7小时, 语言4个小时,
感统/幼儿物理理疗5个小时,每周还去游泳两次),安排很紧。一周要见的个训老师
就超过15个。现在他能知道星期几哪个老师要来,要坐爸/妈的车去找那个老师上课。


昨天去上地板时光课,进门时我说“敲门”。 他便一边敲门一边说“KNOCK KNOCK”。
自己打开门跑过去, 奔到老师那里,一边叫“DEBBIE HUG(拥抱)”。
跟老师拥抱后,主动出手牵老师的手。上完课后,又主动出手牵老师的手说“DEBBIE
回家家吃饭”。DEBBIE也说他语言有进步(因为DEBBIE有两周没见到他了)。

昨天最好笑的是回家后在饭桌上我给大家讲他在DEBBIE处的表现,他时不时的看我
两眼。然后我们问他“妈妈在讲哪个?”他挺认真的神情说“妈妈在讲宝宝!”逗
得我们大笑!看来他听得懂你讲的事了。现在你问他,今天我们去找了哪个老师上
课,刚才我们去干什么了(游泳), 他也能够回答了。最近我们在给他加时间的概念
(星期,上午, 下午, 晚上, 等等)。

不好的方面,固定模式行为严重。不准爷爷关门(要妈妈关(妈妈在时)),打微波炉等
等。下周去参加ABA协会办的针对行为问题方面的会议,希望有所斩获。
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60#
 楼主| 发表于 2007-3-8 00:06:25 | 显示全部楼层

re:我觉得小孩还是ASD,因为这两个月才去两...

我觉得小孩还是ASD,因为这两个月才去两个专家处看过。只是这一两个月他的语言
的确有较大的进步。他是快三岁的孩子了。比起同龄小孩知道的东西不多,还不懂
得情感,说话品种不多(最近才开始多一些),发音很多不清楚,喜欢吞掉尾音,还
几乎没有评论性的语言和情感的语言。几个语言老师现在同步出击在攻他的几个音,
希望有所改善。

我在这里说的都是孩子表现出的进步,其实他还有很多问题。当然他跟以前相比还
是有较大进步(特别是这两个月)

比如这几天开始出现行为问题:只希望妈妈做这样那样,爷爷奶奶不能做。这是ASD小
孩的固执行为的典型表现。现在家里采取忽视法,他哭也等他哭,但不能满足他的
无理要求。不过我也怀疑最近他的行为问题突然增加是否跟DMPS排毒有关。据说在
DMPS使用头两月,因为汞的流动,很多小孩在行为方面退化,在社交和语言方面进
步。我们正好才排了5轮?

说起他那天不让爷爷关门,非要妈妈关门。我们都不理他,他就哭。开始来拉我去
开门(想我开门后再关门),不成后,又去找爸爸开门。爸爸也不理他,他又去找奶
奶开门,奶奶也不理他。不行了,自己跑上楼去找爷爷去开门。我们叫爷爷也不理
他。否则他让爷爷开门后,肯定要妈妈去关门。最后大家都不理他,又哭了好一会,
停下了哭,自己主动对爸爸说“爸爸,I WANT TO EAT!”。OK,哭饿了,晓得要吃
的了。这次满足了他吃的要求。虽然他行为固执,但在此时我也看见了他的思维。
过去不满足他,他只知道哭,现在还知道想办法了(轮番找人)。记得上次去看评估
的医生,医生说ASD小孩最怕就是对什么都没有反应,他有行为问题说明他对外界有
反应,只是存在正确的沟通。

状态不好时眼睛对视差,叫他不理。说起眼睛对视,第二次去新DIANE处,小孩刚游
泳结束,精神较好。DIANE在短短的时间内(30分钟)至少让小孩有50次以上的对视。
都是小孩主动看她(因为她有小孩喜欢的东西或活动)。实在小孩没看她,她会要求
小孩看她。小孩那天拿着一个熊(POOH)玩,将熊放在玩具屋内躺着,然后看着我对
我说:“TEDDY BEAR IS SLEEPING!” 这是我第一次听见他说这种评论性的话。DIANE听
见后对我们说,在她那里的小孩还没有谁最开始能这样的。她说孩子能正确的玩玩
具。她说孩子VERY VERY VERY BRIGHT。她用了三个VERY。她说她原来训练的小孩中
有几个都摘掉了帽子。她说我们努力的方向不仅仅是让他 摘掉ASD的帽子,PDD-NOS也
不要。她说孩子的潜力很大。她的这番话令我很安慰。当然时刻不能放松要求。DIANE
还给家长布置家庭作业。

另外他还有固定模式的玩法。这也是ASD小孩的通病。

谢谢加加爸爸的建议。他开春后就会上学了(特教班:老师个别带领,但有小孩在一
个班)。我们初步打算让他上半天,另外半天让老师到家来个训和到机构去个训。

再说说他的好的方面。前天我跟着他的DVD唱歌,他一边说“妈妈不唱”一边用小手
禁止我分别在我的手臂和嘴巴处抠了一下。在我还没有反应过来的时候,他已经用
他的小手指沾了他的小嘴皮一下,放在抠了我的两处给我“上药”。这是平时他哪
里碰痛了我们给他的一种安慰方式“上药”。从这点我可以看出:他至少知道抠妈
妈不好,而且怕妈妈痛,给妈妈“上药”。昨天又遇着同样的场景,只是在叫妈妈
不唱时,用小手捂住妈妈的嘴。於是我告诉他可以只说,不要动手。於是我又故伎
重演,他看着我说妈妈不唱,这次小手没动。看来孺子可教。
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