谷蛋白/酪蛋白测试

sunheyou

由于禁食的麻烦和有效性，最好在禁食前进行测试。

前几天，我同http://www.greatplainslaboratory.com/chinese联系，可以做，费用$99.0,下面是通信内容。



Hello,



I can send the collection kit to you.  It comes with all the instructions for collection and shipping.  Then you send the sample back to us.



I also recommend performing the organic acid test.  This test is also a urine test so you can collect one sample and perform both tests.  The organic acid test measures for yeast/bacteria in the intestinal tract.  Many children with autism have this problem.  For more information, you can visit our website at www.greatplainslaboratory.com



If you indicate a credit card number we will charge $30 for the shipping charges to China.  When you send the sample back, you will have a credit on file.  For example;  We will charge $30 now then when you send the sample back for the peptide test, we will only charge another $69.  The total charges will be $99.



We started doing it this way because many times we send the kit and the patients don't send the samples back.  I hope you understand the process.  If not please let me know.



I will await your response.



Missey

GPL

------------------------------------------



Hello,



You will need to send the urine sample through a delivery service like Federal Express or DHL or Airborne Express.  We recommend Federal Express, they usually get the urine to us within 2-3 days.  It can last up to 5-6 days in transit and still be in good condition.  We send you all the necessary shipping documents.



I will wait for the credit card number then send the kit.



Thank you

Missey

GPL







sunheyou

Miranda

施丹你好, 我给孩子作了四个测试. 包括

1) Organic Acid Test

2) Comprehensive Food Allergy

3) Comprehensive Stool Analysis

4) Metals Hair analysis

GPL的测试单上有详细列明如何取样和保存, 大便样品的取样和保存比较复杂一些, 但也不难操作. 大便样品要分两天取两次样, GPL寄来的器材有四个用于装样品的小塑料瓶, 一个白盖, 两个黄盖(里面有液体防腐剂), 一个橙盖(里面有液体防腐剂). 第一天的样品装进白盖和一个黄盖瓶子, 白盖瓶子要放冰箱冰冻, 黄盖瓶子可置于室温下. 第二天的样品装进另一个黄盖瓶子和橙盖瓶子, 都置于室温下. 寄运时, 白盖瓶子和冷冻剂放于保温信封中, 和其他三个瓶子一起放进GPL寄来的盒子中发运.



GPL的资料上说, 取样和保存是测试成功与否的关键. GPL的资料上有详细的说明, 收到资料后先翻译成中文, 把步骤123列清楚. 确定寄运方式和时间后, 倒推时确定每一步骤的时间. 我是确定了周一发运, 然后取孩子周六的大便为第一天样品, 周日等了一整天, 小家伙就是不拉臭臭. 其他样品都已准备好, 孩子他爸已安排周一上午去香港, 急死我们! 又给他吃菠菜汁又给他吃番薯泥, 连开塞露都准备好了, 好在小家伙周一一早就乖乖大便, 取样寄运顺利进行.



我和欢欢妈妈的看法差不多, 孩子的康复不可能短期实现, 不论是哪种手段都要作好长期坚持的打算. 目前我还是把训练放在第一位.

歡歡爸爸

miranda好！

　　關於發鉛的標准問題，我也早有疑惑。我的孩子也是廣州測試七點幾，醫生說結果正常，但我知按美國的標准就超了。但我寧可相信國內醫生的說法，因為很多正常的孩子都是這樣的，否則岂不人人超標？我不想草木皆兵，而且排毒並不是件易事，以我們孩子的內因考慮，誰能做到終身排毒？



歡歡媽媽

xwm96

Miranda,

您做了哪几种测试？其中有FULL ORGANIC ACID TEST IN COMBO WITH THE STOOL？大便样本如何取并保存？谢谢！

施丹

Miranda

To : y08321

我是在离广九车站最近的一个联邦快递站寄的样品.事前我也打电话到香港联邦快递问过, 我申报的样品名是"血清(非传染性)". 联邦快递只是说要用血袋装, 由它提供, 很顺利就寄走了.

至于重金属测试, 广州的测试单位也是ug/g, 和美国是一样的. 只是不知该以何为标准. 在没搞清楚这些之前, 我不想给孩子服排毒的药物. 看过一些医生家长的帖子, 我相信排毒也是有副作用的.

y08321

To Miranda,



我经常到香港。我是打算2月份将样品寄到GPL，所以前几天来香港时，电话询问联邦快递是我办理尿样测试需要什么其它手续时，他们告诉我要有香港医疗机构的证明文件。



所以我想了解您当时是在那家分号办理的，这样我可以直接去那边，这样可能会好些！盼回复！



另外，关于铅测试的标准问题，我也想同您讨论，我们国家的标准是8-10，是什么单位？美国的标准是要小于1，单位是UG/G。是否是单位不同呢？



我家小孩测试结果是12UG/G，按美国标准是很高的了。

Miranda

通过家长的介绍, 我在广州找到广东省科学院微量元素研究所(020-87606805)给孩子再测一次重金属. 测试结果发铅是7.7, 和GPL的结果倒差不多(7.9). 但其比较标准相差很远. GPL认为铅超过1.0就是超标, 我孩子是严重铅过量. 但广东省科学院微量元素研究所认为2.11 – 10.13之间均为正常. 标准不同, 可能是美国和中国对环境污染的标准不一样吧. 我拿测试结果去中山三院咨询过儿童发育行为中心的儿科医生, 医生反对药物排铅, 认为药物排铅的副作用可能比铅过量危害还大. 希望做医生的家长也给点意见.

Miranda

To : y08321

我问过广州的联邦快递, 也是不肯接. 最后我是把样品带到香港, 通过香港联邦快递寄出去的. 国内寄运可能只能用孙老师的办法, 虚报样品名蒙混过关.

Miranda

孩子的测试结果于12月底就出来了, GPL给我传真了一份, 正本用平邮寄过来, 至今还没收到. 传真件有点模糊, 没敢扫描成电子文件, 等正本收到再说. 大致测试内容和大家讨论一下.



有机酸测试 :

我给孩子做这个测试的目的是看他是否需补充B6, 据GPL的顾问的意见, 我孩子应不需补充B6.



92种食物过敏测试 :

测试共92种食物的IgG值. 测试结果表明我孩子对牛奶(0.908)和蛋(0.559)的 IgG值很高. 我于两周前给孩子禁了牛奶和蛋, 两个星期过去了, 不觉得有什么效果, 副作用倒不少. 以前孩子睡前喝一瓶牛奶能整晚安睡, 禁食后晚上总是哭叫. 估计是饿的. 现在睡前给他加一餐, 晚上哭闹少了. 咨询GPL顾问的意见, 说牛奶有安眠作用, 禁食牛奶所引起的睡眠障碍应该是暂时的. 问题是我不知道 IgG值是什么东西, 跟我们所关心的酪蛋白肽和谷蛋白肽有什么联系. 应该怎样判定孩子的禁食效果.



重金属头发测试 :

测试结果表明我孩子的铅(7.9)和砷严重超标, 这是我最担心的. 我打算在国内再测一次微量元素, 再给孩子排毒.



以下是我和GPL的来往电邮, 供大家参考.





====================================================================

(Mr. or Mrs.) Ying:



Your son's kynurenic acid is normal, so he does not show deficiency of

B6/magnesium. However, the child may still improve with that therapy and you

can try it.



Sam is not going to be deficient in protein if he is eating meat. However,

he is much less allergic to egg yolks, so he could have an occasional yolk

in a baked food or pudding.



Milk has the opiates and withdrawal from opiates can cause your son's

restlessness at night. I hope it will be temporary.



Please read the mercury detox protocol on the Autism Research Institute

site, as well as the Yahoo! groups

"Autism-mercury" and "Chelating Kids". It is a lot of reading, but will give

you information about what parents around the world are doing.



We will try and help you find direction -- I realize there is not much help

in China.



Pamela Gilford

Nutrition Advisor



============================================================================

>

> Dear Missey,

>

> I have not got the original test reports yet. But anyway, I have got the

> information from the faxed copies. Please can you pass my questions to your

> biochemist?

>

> Question 1 :

>

> What's your suggestion according to the organic acid test result? Is my son

> necessary to take the extra Vit B6?

>

> Question 2 :

>

> According to the food test report, my son Sam has a very high score on the

> milk and egg. So Sam is off all the milk and egg two weeks ago. But I can't

> see any improvement from him. He used to have 500ml of milk each day. 250ml

> at the breadfast and 250ml before sleeping. He likes milk very much and

> always enjoy a good whole night sleeping after the milk. After the off milk

> diet, he always cried at night maybe because of hunger. I let him have one

> more meal before sleeping this week, he cried less at night. Without milk

> and egg, he's getting slim in these two weeks. I am afraid he's leak of

> protein though he has meat (pork, chicken, beef, fish, etc).

>

> What's your suggestion here? Am I necessary to do further peptidases test?

>

> Question 3 :

>

> According to the hair test report, Sam has a very high score of the metal

> lead, which makes me very worry. I can't see any lead source among him

> except the air pollution of China. What should I do? There are also some

> other metal score on the high side. Please guide me how to deal with it.

>

> I might have further questions after I receive the original test report. I

> have no other choice but ask for help from you because the doctors here

> know little about the autism.

>

> Your prompt feed back will be the most appreciated!

>

> Best Regards,

>

> Yours,

>

=============================================================================

>

> Hi,

>

> I have faxed all the results now.  Did you receive all the test results?

> You will also receive them by mail shortly.  The urine and stool tests were

> sent separately than the hair and blood, so you will receive the urine and

> stool reports first.   The blood and hair reports were sent just yesterday.

>

> Please let me know if you have any questions and concerns.  Don't forget,

> we have a biochemist on staff that goes over results with patients by phone

> appointment.

>

> Thank you

> Missey

> GPL

>

y08321

To Miranda,



我电话问过联邦快递，如果是我们私人寄的话，他们不受理，请问你是如何办理的，能否详细的告诉我，谢谢！

sunheyou

大家好。

    我小孩的测试前三项做完了，同GPL 专家就检测报告，进行了交流，现整理供大家参考。

    在这里，我深深感谢美国的家长，没有他们的无私帮助，这件事情无法完成，我们以琳的所有家长，感谢异国的姊妹的帮助。

孩子的报告影印件，有需要的家长，可以E-MAIL 告知。



sunheyou







-------------------------



GPL: This child has more food allergy issue (Food allergy-comprehensive

test and Peptides test) than intestinal yeast (organic acid test.) issue.

Her organic acid test result is close to normal. She may benefit from

reduced sugar intake. (He also mentioned a trial of coconut oil-I never

heard of, or Nystatin to help reducing the yeast, but he stressed over and

over the food allergy and peptides are more major than GI problem)



Baby genearch: Is the Kynurenic value 3.3 considered very abnormal?



GPL:  NO. I have seen some kids have 100 to 1000 times higher value (He

also meant some other values in this whole panel test, he mentioned this

relies on his experience). She may benefit from a high dose B6 trial. I

recommend she is on a diet with complete elimination of casein, gluten, and

soy for two months), then reintroduce gluten and soy, one at a time to

identify which one of these two causing problems (This process is called the

retest). This child is so severe allergic to milk, so don’t even think to

retest dairy product (yogurt included). When consider casein and gluten free

diet, the child should also be on soy free diet (Which translates to that

you should do casein, gluten, soy free diet. He specially stressed that all

3). This child has major trouble with dairy products. (He weighs more on the

food allergy test)



Baby genearch: What about other bean (legume products) flours? Do they have

incomplete digestion (produce gliadorphin) issue?



GPL: not to my knowledge.



Baby genearch: Can Kirkman Peptidase substitute for the diet?



GPL: It is controversial. ONLY a few people report success with

Peptidase only. I recommend diet plus the enzyme.







(Note: You know dairy product means milk, cheese, yogurt, and etc. Make sure

TT does not have any when she is on diet, not just milk.)







GPL: In the food allergy panel, any food’s test value is higher than 2,

people should consider to completely eliminate them, and don’t even retest

for a long time.







GPL: They should also consider heavy metal tests. (I told him you are

doing it) China is highly polluted. I prefer hair analysis; it is more

sensitive.







Baby genearch: Is that true if someone exposed to Hg (mercury) beyond two months, the

test result isn’t reliable?







GPL: I don’t believe that. I had someone at age 12 done Hg test. The

test still reveals he has mercury even though he had Vaccine long time ago.







Baby genearch: what do you think about oral spray type of chelating? Do you trust

them?







GPL. You mean things like seaweeds. (He probably didn’t even aware

those crabby oral sprays). They may work, but they don’t have as much

documentation as DMSA. DAN protocol is more reliable, has more than 100

documentations.







Baby genearch: What about DMSA toxicity?







GPL: DAN protocol is a low dose protocol, is pretty safe. PDR

(physician desk reference book) protocol for removing lead using DMSA uses

much higher dose.







Baby genearch: Cilantro, it can extract Hg from the body, it could also extract from

soil during the growing. I would like to suggest a test if all possible that

your lab tests the Hg level in the commercial cilantro extract?







GPL: No. We are very busy. I don’t have the capacity to do a research

project like that. Cilantro is a biomaterial; the dosage is hard to control

from one batch to another. (He implies this to both cilantro, and cilantro

extract). If people couldn’t afford DMSA, or if it is not available to them,

people could try cilantro, or seaweeds.







Baby genearch: Thank you very much! Have a good day!



I added my comments in the parenthesis (括号) within his talk portions







The incomplete digestion of casein, gluten and soy resulting in casomorphin

and gliadorphin is different from food allergy.







Please look through this website www.food-allergy.org. It gives basic

understanding of IgE, and IgG-mediated allergy responses.

y08321

给我发一份参考好不好。y08321@21cn.com,谢谢！

有没有下结论呢？

sunheyou

孩子的测试报告已回来好几天了，我已扫成电子文件，但由于无法贴上，所以无法进行进一步的交流。





sunheyou

y08321

请问测试的结果如何？对测试的结果有无进一步的解释呢？盼回复！！！

Miranda

大约一周左右有机酸的测试结果就传真到我了. 但上面的英文医学词汇看得我很辛苦, 连字典都查不到. 我想等其他的结果出来后一起找医生看看参考一下. 希望家长们继续保持联络, 互通信息.

To Barry : 我在香港是找联邦快递Federal Express寄的.

云驰妈妈

这里的信息太好了，真得非常感谢各位热心的家长。我上网察看了。我准备也给儿子做这样的测试，希望参考你们的做法，烦请sunheyou、皮皮妈妈、Miranda等将你们的测试项目和结果告诉我们好吗?







<font size="1" color="darkblue">Edited by - 云驰妈妈 重新编辑於 2002/12/20  23:19:43</font>

Barry

还有一个问题，在香港什么公司可以提供快递服务呢？

Barry

Miranda，



测试周期大概是一周，请问现在有结果吗！

Miranda

试一试http://www.greatplainslaboratory.com

lyz

我试过了，可上不去呀！<img src="images/icon_smile_tongue.gif" border=0>



杜蘅妈妈