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医学干预促进孩子的康复-- Kids with Starving Brain

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1#
发表于 2003-4-6 14:53:16 | 只看该作者 回帖奖励 |正序浏览 |阅读模式
Sun Heyou 和 Shaer 帖子我以前看了,总是不在意。直到这几天通读了 Kids with Starving Brain 以后,才知道原来医学干预已经形成了比较明确的方法,而且在不同孩子身上实施后取得了显著的效果,甚至有完全康复的案例。本来想翻译出来,后来想到版权的问题,还是不妥。我读了几遍,觉得收获很大,就是我们应该采用医学干预来促进孩子的康复。kpv_7788在相关的帖子也提到医学干预的重要性,我们孩子的关键问题是自免疫系统失调从而导致神经功能紊乱,而人体70%-80%的免疫系统分布在消化道,所以不难理解为什么我们的孩子都有肠胃问题,表现在挑食,便秘,腹泻等方面。该书提到的医学干预方法安全实用,主要包括禁食,营养补充(修复肠漏),排毒(重金属),还有自免疫系统增强等,的确是一个长期的过程。越早干预,效果越好。



我发这个帖子是因为看到许多家长给孩子测试而想到的。测试以后该怎么办?禁食和B6+Mg, 还有DMG当然必不可少,另外还需要补充其他营养元素。 Kids with Starving Brain 这本书的作者是自闭症医生,她认为尿肽测试必要不大,只要孩子有挑食问题,说明必须禁食,因为测试数值不一定反映真实状况(有些孩子有便秘,但是测试数值正常;反过来的情形也有)。



建议关心医学干预的朋友们都读读这本书。



46#
 楼主| 发表于 2006-10-27 14:08:23 | 只看该作者

re:来自<<自闭症:有效的生物医学治疗>>...

来自<<自闭症:有效的生物医学治疗>>
更多抗真菌药物:
制真菌素(Nystatin宁斯泰定)或者Amphoteracin B
Nystatin在美国50多年前就开始使用了. 关于它的潜在毒性, 当口服的时候, Nystatin和它的相似物Amphoteracin B与S. boulardii属于同一种类, 它们都不被血液吸收,仅仅治疗肠道. 在过去的二十多年中, 根据测定真菌的粪便培养实践中,我们发现越来越多的酵母对Nystatin产生抵抗力, 所以我认为没有在美国普遍使用的Amphoteracin B是更好的选择(注:对于美国孩子来说).  口服纯粉末形状的Amphoteracin B,并且让它在孩子的口中停留一会,然后再咽下去, 因为口腔是酵母喜欢定居的地方. 另外, 最好频繁服用,每天4次, 因为它不进入血液. 许多药物一旦咽下去后1个小时左右, 当浓度水平达到峰值水平后, 就进入血流,然后它们浓度开始降低, 因为肝脏把他们解毒后, 排泄到尿中;整个过程就像涨潮和退潮.



服用Nystatin或者Amphoteracin B就像把一些苹果扔进河里, 它们顺流而下, 在每个点都经过, 但马上离开.  如果你的孩子在消化道的任何部位有酵母, 只有当这些药物正巧流经酵母所在的区域才会产生效果. 药物走了以后, 剩下的酵母会繁殖并且重建家园. 这就是为什么应该在饭前或者饭后半个小时以上服用, 因为可以避免药物与食物争夺通道, 从而可以增大抓住酵母的机会.



制真菌素(Nystatin宁斯泰定)或者Amphoteracin B没有任何显著毒性, 因为它们只停留在肠道内. 我25年的医疗实践中,给成千上万的患者开Nystatin, 从没有发现中毒反应.



然而, 我也曾经发现死亡反应, 偶尔还有些吓人.  不过遵守以上服用方法和避免便秘, 死亡反应可以最小化.  对抗真菌药物的不良反应正好是你要治疗的症状,这是一个好消息;因为这证明这些症状与酵母问题有关联, 最终会随着抗真菌治疗而改善
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45#
发表于 2006-10-26 22:30:34 | 只看该作者

re:you shall give your...

you shall give your child nystatin step by step, little by little. look at the book "kids with starving brain" or Dr. Shaw's 自闭症生物疗法, there's usage per day. As I remember, the first 4 days, the dosage is different. using this method can reduce the die-off. Also you can use 活性炭 (activated charcoal-- kirkman has this: http://www.kirkmanlabs.com/products/specialty/charcoal/charcoal_839_100.html
) to reduce the die-off reaction.

here's a web page from an experienced Mom who has ASD kids. Please read this, it will be helpful! In the following, Dana said use activated charcoal 45 mins after you take anti-fungal medicine.  However, my Dan! doctor said we shall use 2 hours after any medicine, otherwise, all medicine you took would be absorbed. so we give my kid before bed time. Just the info here to let you refer.

Sorry, I am so slow to type chinese words. So if someone can translate it into chinese, then it'll benefit most of parents here.
==========================================================================================
From Dana's view  : http://www.danasview.net/yeast.htm

Yeast and Bacteria

Introduction

The healthy gut contains both yeast and good bacteria, in balance with each other. In many AS, however, one or the other can be out of balance. For example, yeast can overgrow and be too prevalent. Bacteria can overgrow, or there can be a complete lack of bacteria. Also, bad bacteria can develop, rather than good bacteria.

You can read Dr. Shaw's book [Great Plains Lab] online here -- Biological Treatments for Autism and PDD.

Symptoms of yeast and bacteria imbalance

For my son, yeast causes symptoms similar to phenol symptoms -- hyper and giggling, and sleep problems. Sometimes he would spin himself around in circles. For other children, it can cause red ring around the anus, "spaciness", anger and aggression, headache, head banging, sound sensitivity [holding the hands over the ears] and other similar issues. Also, my son's bms went from being firm and solid, to looking "airy and fluffy", similar to sponge cake. Also, it looked like it had strings of melted cheese in it. But sometimes my son's bms did not look any different than normal.

For bacteria overgrowth or "bad" bacteria, parents report their child had poor eye contact, tantrums, hand flapping and stimming, frequent [5-10 per day] and nasty bowel movements ranging from real soft to liquid. For my son, his bacteria bms looked like diluted cottage cheese.

There are several different types of yeast, including candida, which appears to be the most common variety. There are also several different types of "bad" bacteria, including clostridia and Citrabacter F.

My son never had a yeast or bacteria issue so far as I know, until I began chelating with ALA, when he did develop his first yeast issue. Because ALA excretes metals thru the gut, it does tend to increase the possibility of a yeast issue in yeast-sensitive children. Some people also report an increase in yeast issues when using DMSA for chelation.

There is also an increased tendency to develop a yeast issue if your child has to use antibiotics for ear infections or other issues. So if you choose to give your child antibiotics for something, be sure to use one of the OTC remedies indicated below, or ask your child's doctor for a prescription for an anti-fungal medication to use along with the antibiotics.

Lauricidin and other anti-virals can also cause yeast. With chelation [removal of heavy metals], my son's tendency toward yeast was entirely eliminated for about a year, until I started anti-virals. When I started Lauricidin with my son, his viral issues significantly reduced, but his yeast significantly increased. More information on this below.

Yeast can be in other places besides in the gut. Yeast can be in the mouth [thrush], or on the skin [diaper rash area or feet/toes or other skin area]. See ideas under OTC methods for addressing these yeast issues.

Testing

Testing for these issues can be performed at any competent laboratory, altho many parents report that "standard" laboratories did not detect their child's yeast and/or bacteria issues. Here are two laboratories with sites on the internet for your information.

The Great Plains Laboratory -- Testing

Great Smokies Diagnostic Laboratory

Dietary treatment options

During the "die-off" phase, when the excess yeast and/or bacteria is dying off, toxins released by the dying organisms can [altho not necessarily so] cause very severe negative reactions, so it is best to progress slowly, to minimize this die-off effect. Giving activated charcoal about 45 minutes after any yeast treatment can help absorb the toxins of die off.

The first thing to do is eliminate or at least drastically reduce the consumption of yeast, sugars, and carbohydrates. This includes using yeast-free breads and other baked goods. Sugars include cane sugar, fructose, honey, molasses, fruits, maple syrup, high fructose corn syrup, and other sources of sugars. Check supplements, especially chewables. A "little" sugar is okay, but you need to be aware of, and monitor, the total sugar intake.

For reduced carbohydrates, consider your child's consumption of wheat, rice, potatoes, corn, and other grains. There is a specialized diet called the Specific Carbohydrate Diet, which removes from the diet the carbohydrates which feed the yeast, allowing the body to rid itself of yeast on its own. For information on SCD diet specifically for autism, click here.

Some kids need removal of these carbohydrates AND removal or at least reduction of sugars as indicated above.

Over the counter treatment options

After considering dietary interventions, it is best to first try supplementing with probiotics, which is good bacteria and "food" for the good bacteria. This will not only help the good bacteria, but it also helps yeast issues because these bacteria will then kill the yeast themselves. Unfortunately, my son does not tolerate any probiotics that I have tried, even with enzymes. So you should choose a probiotic product and then start slowly, watching for effects. It may be that the probiotic is tolerated, but is causing die-off effect, so it is difficult to know if any negative effect is intolerance to the probiotic, or die-off. With my son, I started probiotics when he did NOT have a yeast issue, so I know it was intolerance and not die-off effect.

Here is a very comprehensive description of what are probiotics, and a list of the different types of probiotics and what they do.

Probiotics short course and strains

Probiotics are cultured in some sort of "medium", including milk and apples and possibly other things. If you are trying to stay gfcf, be sure you select a probiotic which does not contain milk and is not cultured in milk.

You can find many probiotics at any local health food store. You can also purchase probiotics and yeast control at Kirkman Labs, Vitamin Research Products, and Culturelle.

Other over the counter [OTC] remedies you can find at most health food stores, that you can try, are GSE [I use this for yeast] and olive leaf extract and colloidal silver [for bacteria]. Other yeast remedies you can consider, are garlic, oil of oregano, uva ursi, and biocidin.

I use GSE [grapefruit seed extract] for my son's yeast issues. It works GREAT! Eliminated his yeast issue in 2-3 days. I use the concentrated drops from Nutribiotic, which I buy at my local health food store. There is available a capsule form of GSE, but I have never used that so I do not know if it is equally as effective. There are a few potential negatives to GSE that I know of, one is that it does have phenol effect, so start with 1-2 drops in the morning, then watch to see any phenol-type reactions. Also, if your child is using SSRI medication, then you should not use GSE, because it slows down liver metabolism and affects levels of medications like SSRIs. And in individuals with liver metabolism which is already slow, they would want to avoid GSE, or if for some reason GSE is required, it is recommended to avoid strong-flavored foods and spices, and that will help.

Some parents have found similar dramatic results for their child's bacteria issues by using colloidal silver. There is some information that it should not be given long term, but over a period of 10 days, along with Culturelle, and then continuing with Culturelle alone, produced dramatic positive results for several people. There is a possibility of argyria, which is silver deposits under the skin causing discoloration, so do consider potential negatives as well as positives, and do not use it long term. My son's bacteria issue was not as bad as some kids, so he did well with olive leaf extract, which is an anti-bacterial and an anti-viral.

Yeast can be in other places besides in the gut. For yeast in the mouth [thrush], using GSE or other method can help. For yeast on the skin [diaper rash area or feet/toes or other skin area], you can put a diluted GSE on the skin, or go to your larger grocery store and purchase Lotrimin cream.

There are enzyme products now available, that will digest the yeast cell-wall and allow either the body's own system [along with probiotics] to eliminate the yeast, or if given along with GSE or other anti-fungal, the enzymes will cause the anti-fungal to be much more effective. These enzyme products are No-Fenol from HNI, Candidase from Enzymedica, and Candex [don't know the manufacturer for this one].

Prescription treatment options

There are several medications available for yeast and bacteria issues. One benefit of these options is that you and your doctor can choose a medication which targets the specific type of yeast or bacteria which is at issue. Medications for yeast include Nystatin and Diflucan. Medications for certain bacteria issues include Bactrim, Vancomycin, and neomycin [specially compounded oral suspension].

Lauricidin and Yeast

Lauricidin is an anti-viral over-the-counter supplement. I am using it for my son's viral issues. However, even tho it is not *supposed* to, it does cause yeast for my son, even tho he had not had a yeast issue since about round 50 of ALA chelation [chelation of heavy metals generally also helps resolve the underlying cause of yeast issues for many kids]. Because Lauricidin is *supposed* to be effective for yeast issues, my theory is that it is the viral die off which is triggering the yeast issue, and the yeast it causes is different than the traditional "gut-yeast" of many kids. My son's yeast from use of Lauricidin is not "gut-yeast", because it does not manifest in the bms at all, only in his behaviors.

I used GSE for yeast before chelation removed the yeast problem, but GSE did basically nothing for my son's yeast issue which was caused by the use of Lauricidin. I tried oil of oregano, which appeared to work better on this yeast, but not as well as I would like.

Then someone I know, whose child also developed yeast with Lauricidin, had her child tested and she sent me his test results. The results indicated that her child had two strains of yeast [albicans and parapsilosis] and those strains were susceptible to the OTC yeast killers uva ursi and garlic. So I tried those instead of GSE and oil of oregano, and my son is much better now.
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44#
发表于 2006-10-26 21:57:21 | 只看该作者

re:宁斯泰定有酵母菌死亡反应!

宁斯泰定有酵母菌死亡反应!
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43#
发表于 2006-10-26 15:35:00 | 只看该作者

re:有谁给孩子吃过宁斯泰定?有无酵母菌死亡反...

有谁给孩子吃过宁斯泰定?有无酵母菌死亡反应?
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42#
 楼主| 发表于 2006-1-12 10:38:08 | 只看该作者

Re:医学干预促进孩子的康复-- Kids with Starving Brain

以下是我从网上查到的答案,供参考.来源是http://www.clinet.com.cn/clinetforum/cgi-bin/topic.cgi?forum=4&topic=379



(iu)国际单位是用生物活性来表示某些抗生素、激素、维生素及抗毒素量的药学单位。



以下是1个国际单位维生素A、C、D、E、青霉素的实际质量:



维生素A:1 国际单位(IU) = 0.300μg 结晶视黄醇 = 0.344μg 维生素A醋酸酯 = 0.550μg 维生素A棕榈酸酯 = 0.358μg 维生素A丙酸酯 = 1 美国药典单位(USP)



维生素C:1 国际单位(IU) = 50μg 抗坏血酸



维生素D:1 国际单位(IU) = 0.025μg 维生素D3(晶体) = 1 美国药典单位(USP) = 1 国际雏鸡单位(ICU)



维生素E:1 国际单位(IU) = 1mg DL-α-生育酚醋酸酯 = 1 美国药典单位(USP)



青霉素:1 国际单位(IU) = 0.60μg 结晶青霉素G钠盐

  









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41#
发表于 2006-1-10 11:42:38 | 只看该作者

Re:医学干预促进孩子的康复-- Kids with Starving Brain

海生:

请问IU(国际单位)和mg是怎样换算的,谢谢



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40#
 楼主| 发表于 2005-12-30 23:24:16 | 只看该作者

Re:医学干预促进孩子的康复-- Kids with Starving Brain

抱歉,最近一直没有看医疗的贴子,都两年多的陈贴子了.



一个澄清:  下面是 测试是否过敏食物的清单, 而不是全部禁食的清单.



食品范围包括

杏仁; 苹果; 鲕梨; 香蕉;大麦;蓬蒿; 月桂叶; 绿豆; 利马豆; 斑豆;牛肉; 蓝莓; 麸皮; 西兰花;白菜;甜瓜; 红萝卜;腰果; 花椰菜;芹菜;乳酪, 切达乳酪;cottage乳酪; 瑞士乳酪;鸡;桂香; 蛤蜊;可可粉;鳕鱼; 咖啡;可乐;玉米; 螃蟹;黄瓜;莳萝;蛋白;大蒜;姜;谷蛋白; 葡萄; 葡萄柚; 黑线鳕; 蜂蜜 ; 柠檬;生菜;romaine 生菜 ;龙虾;麦芽; 牛奶;蘑菇;芥末; nutra sweet TM;燕麦;绿橄榄; 葱;橙;牛至 ;豌豆;花生;黑胡椒;辣椒;绿辣椒;菠萝;猪肉; 甜土豆 ;白土豆;褐米;黑麦红花;三文鱼;扇贝;芝麻; 虾;sole鱼;大豆;菠菜;绿豆芽 ;南瓜;草莓;糖, 藤茎;向日葵;箭鱼;黑茶;烟草;蕃茄;鳟鱼;金枪鱼;火鸡 ;黑核桃 ;麦子;酵母;面包的酵母;酿酒的酵母; 酸奶 .



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39#
发表于 2005-12-28 19:53:57 | 只看该作者

Re:医学干预促进孩子的康复-- Kids with Starving Brain

大家好有人说胡萝卜、绿豆、大蒜等可以排毒,但有人说这类东西属禁食一类。请问到底是怎样一回事?到底哪些应该禁食的?另外,今晚我买了一瓶金枪鱼油(是脑类的营养药)可是回家参照海生先前说金枪鱼过敏(属禁食一类)请问我该怎么办?



陈文
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38#
发表于 2005-12-25 20:53:16 | 只看该作者

Re:医学干预促进孩子的康复-- Kids with Starving Brain

前一段有位家长提供的帖子中提到:“Houston和Kirkman公司都生产用于孤独症治疗的促消化酶,但是两者在促消化酶的用法上有所不同。一些父母通过使用Houston生产促消化酶使孩子不用再吃特餐。”不知哪位家长用过Houston生产的促消化酶?真的不用再吃特餐了吗?
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37#
发表于 2005-12-25 10:40:44 | 只看该作者

Re:医学干预促进孩子的康复-- Kids with Starving Brain

KAIAKI2003:科克曼的全酶,只有在禁食的情况下,才有用,因为它只能分解消化少量的谷蛋白和酪蛋白.



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36#
发表于 2005-12-23 22:46:21 | 只看该作者

Re:医学干预促进孩子的康复-- Kids with Starving Brain

我儿子奶类已经全都禁了,但是面食这些好象很困难



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35#
发表于 2005-12-23 22:38:26 | 只看该作者

Re:医学干预促进孩子的康复-- Kids with Starving Brain

我也有同感,奶类相比之下比麸类好禁.



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34#
发表于 2005-12-23 16:29:39 | 只看该作者
提示: 作者被禁止或删除 内容自动屏蔽
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33#
发表于 2005-12-23 15:09:10 | 只看该作者

Re:医学干预促进孩子的康复-- Kids with Starving Brain

谢谢方静老师的信息,对我很有用。其实,禁食奶类很容易,我孩子现在根本不喝牛奶,只要不吃奶片和酸奶和奶油就可以了吧?我只是对禁食麦类下不了决心。唉!我还得说服他的顽固的爸爸,怎么办?



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32#
发表于 2005-12-22 23:07:15 | 只看该作者

Re:医学干预促进孩子的康复-- Kids with Starving Brain

JEAN:

    你所做的测试根本不能说明是否需要禁食,即使结果告诉你需要禁,也可以不禁的。是否需要禁食,是看这两种食品所含的谷蛋白和酪蛋白会否对孩子形成毒素的作用。这个测试也叫尿肽测试,据我所知,到目前为止,国内还做不了这样的化验。



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31#
发表于 2005-12-22 23:01:46 | 只看该作者

Re:医学干预促进孩子的康复-- Kids with Starving Brain

我觉得还是禁食好。我小孩禁食后真正有点进步,尤其是肠胃好了,不再腹泻与便秘了。禁食也没那么可怕,完全可以找到替代的食品,习惯了也就自然了。



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30#
发表于 2005-12-22 17:18:07 | 只看该作者

Re:医学干预促进孩子的康复-- Kids with Starving Brain

我想请问海生和各位有经验的家长:我看了《大脑饥饿的孩子们》一书后,立即带孩子在儿童医院做了血清的定向食物过敏测试,可是测试结果显示他对牛奶和大麦不过敏,这该怎么解释?是不是国内的测试手段不行?

我现在进退两难,想给他禁食,但是检查结果又不支持过敏的结论,不禁食,又怕是结果不准,耽误了孩子。我该怎么办?



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29#
发表于 2005-12-15 11:07:02 | 只看该作者

Re:医学干预促进孩子的康复-- Kids with Starving Brain

<img src="images/icon_smile_approve.gif" border=0><img src="images/icon_smile_approve.gif" border=0>



水中月
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28#
 楼主| 发表于 2003-5-8 09:49:56 | 只看该作者

Re:医学干预促进孩子的康复-- Kids with Starving Brain

即使强调1000次禁食,也不过分。无数的孩子通过禁食获得了很大的改善,方老师的孩子石头就是一个最好的例子。我的孩子通过禁食改善了睡眠,便秘好多了,其他方面也在进步。我不明白许多家长为什么还在犹豫,等待什么测试结果,这是在浪费孩子的时间呀。如果不禁食,一切医疗干预无从谈起。方老师这方面已经取得了很多经验,这里我把我翻译出来的相关资料给大家看看。希望大家能够重视。



自闭症成因模型之一:谷蛋白/酪蛋白,消化酶缺失,酵母菌过度生长



许多自闭症孩子不能消化谷蛋白和酪蛋白其中的一种或两种。谷蛋白是小麦和其他许多食物中存在的一组蛋白质的统称;酪蛋白是牛奶蛋白。Alan Friedman 博士及其研究小组建立了一个理论,自免疫机理可能使得对于消化谷蛋白和酪蛋白至关重要的一种酶DPP-IV缺失(遗传因素)或者没有激活。Friedman的模型指出DPP-IV的缺失或者没有激活造成类似吗啡的物质在体内积累。这种累积使得自闭症儿童频繁地自我封闭。自闭症的共同特点之一就是忽视他人,看起来好像生活在自己的世界里。无论Friedman的假设是否真实,许多自闭症儿童确实对一种或几种食物过敏,这点可以通过食物过敏试验和禁食来得到证明。大多数自闭症孩子肠道发炎,普遍认为孩子过敏的食物如麦类和奶类刺激他们的肠子。研究还发现抗生素刺激肠道,同时伤害免疫系统。禁食麦类和奶类是针对不能消化谷蛋白和酪蛋白的首要疗法。第五章讲述如何开始并且保持禁食。免疫系统受损和肠子发炎的孩子尤其表现出对真菌(特别是假丝酵母类)入侵的脆弱。粪便培养和其他实验室测试的结果经常识别出白色假丝酵母的过度生长。确实,一些研究表明假丝酵母类真菌和其他真菌可能是造成自闭症孩子刻板行为和健康问题的主要原因。许多孩子的病史记载了大量的耳朵感染和抗生素的频繁服用。所以,这些孩子肠子内的良性菌群可能已经被毁掉了,就为不良真菌和细菌繁衍打下了一个基础。类似的道理,有机汞化合物能够负面地影响肠子内的菌群。所以,疫苗的乙烷汞,在体内首先通过肠道生存,也可能损伤肠子内菌群。当疫苗乙烷汞中毒与滥用抗生素伴随出现时,良性菌群数量减少,导致了肠子内的恶性菌群繁衍和酵母菌的蔓延。



禁食麦类和奶类是一个很好的例子。几乎所有的孩子都从禁食麦类和奶类中获益,我就不必为了建议禁食而推荐内窥镜检查法和肠子活组织检查来证明肠子的炎症。庆幸的是,很多专心的研究者已经为我们做了这项工作。



在我的医疗实践中,我已经看到了坚持禁食的自闭症患者取得的一些巨大进步。一个两岁的孩子通常也是挑食的。无论年龄如何,通常很困难在开始一个新的治疗方案时停止进食甜品。然而,为了遏制其负面效果,还是值得去做的。正如我不断重复的,现在我强烈建议每一个自闭症孩子的家长尝试全面给孩子至少禁食4到6个月含酪蛋白和谷蛋白的食物。在第五章,我将详细说明如何实现禁食。



请方老师,孙老师斧正。

海生



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