以琳自闭症论坛

标题: 苦尽甘来---世界上最好的DAN!医生：儿子生物疗法记录 [打印本页]

作者: kwenma2 时间: 2006-11-7 04:13
标题: 苦尽甘来---世界上最好的DAN!医生：儿子生物疗法记录
找到目前世界上最好的DAN!医生(排队3个月，该医生是在DAN！会议上培训
其它DAN！医生的. Other Dan! doctors strongly recommend this doctor and think she's one of the best Dan! doctor in the world.)，开始儿子的生物疗法。希望通过此贴来记载儿子的治疗过程和进展。也想与大家分享有用的信息。。但是家长一定要在医生的指导下进行排毒和吃处方药。切记！另外行为疗法也一定要跟上。

My son was non-verbal, no eye contact, social interest...

We did following recently:
-- start ABA in home.(only 10 hours per week by teachers)

-- Train him to blow bubbles, tongue movement for 2 months.. then he starts to open his mouth : say "Mom" , "奶奶", "拿来" within one week by Mom's ABA training. But it's only 鹦鹉学舌. no active language.

-- start GFCF diet (禁食); and start to give some supplements based on two DAN! practitioners;
This month ABA class increased to 18 hours.

-- start B6, Mag and DMG. 2-3 days after above supplements, he starts to have active language (can active call Mommy when he needs Mom).

-- start to see first Dan! doctor and start MB-12 shot;

-- start to TD-glutathione;

-- finish hair toxic analysis, OAT, viral test, stool analysis and other tests (totally 10 tests).

-- start to show some interest to follow other kids to crawl the McDonalds ball crawl. A liitle bit social interest.

-- first time see current doctor : Diflucan + Valtrex protocol to treat virals.
(more than 10 skin warts on his face shows virals issue. Also he has yeast problem).

Diflucan only took for 14 days. then stop. and start to use Saccharomyces Boulardii to control yeast.

Rash & lip swollen happened, yeast problem up because Valtrex stir up the yeast.
Add activated charcoal makes thing better.

-- phone consulting with doctor:
Add in taurine and GABA, then sleep improved. Now he can sleep through night for 9 hours. (previously every day almost wakes up during night.) However, if yeast is out of control, he'll wake up. So we add activated charcoal for him. Then sleep goes better again. Only in this month, I can have enough hours to sleep and can watch TV show sometimes after he sleeps, amazing:-)

Ordered OAT test for yeast. And also another test called porphyrins test (urine test for marker of heavy metal toxics, latest effective test) from Paris, France (now only this lab do this accurately in the world) to determine the heavy metal marker.

Now he can have almost active words such as "妈妈抱，出去，麦当劳，喝汤，天线宝宝，兰瓜，白车，猪油，乖宝宝爱妈妈(爸爸，爷爷，婆婆)，妈妈开车，婆婆坐车, two more, blue, pink, red, green, big bubble, big ball, more please, count from 1-10, A-Z". although it's still limited to these small amounts of words, I already felt happy.

use up Saccharomyces Boulardii, then using GSE for one week and then switch back to Saccharomyces Boulardii to control yeast. During GSE, his stool become loose ( 2 times per day). And finally I knew it's because high-phenol in GSE, we shall add No-phenol enzyme together with GSE. Also another possibility is that the stool can be worse when the anti-fungal is effective. So we shouldn't stop the GSE, we shall push through with more activated charcoal for at least 2 weeks.(learnd this from our DAN! doctor on 11/06 consultation.)

Also Add candex(one kind of Enzyme) for yeast control starting from Nov.1. --- this is decided by me and I confirmed with my DAN! doctor.

This month starts 2 hours speech therapy per week. 1 hour early intervetion.

2006/11/06: phone consulting with doctor: OAT test shows Diflucan is not effective to yeast control. So will put Sporanox(prescription drug) on. Also will have blood test for liver/kidney check because of using Diflucan and Sporanox.

Also will start chelation. Since my boy has high lead and mercury from the porphyrins test, choose EDTA supporsitory for 1 month to pull out lead and then use suppository DMPS. I am looking forward any good news from the chelation process. Our protocol is 3 days on , 4 days off.And in the 3 ON days, need more mineral supplements.

starting from today, ABA class increased to 24 hours per week.
Now totally 27 hours class (including ABA , speech and early intervention )per week.
We are looking for more hours either ABA or floor time.

I will try to add ViraStop (another Enzyme, it's effective for Valtrex to kill virals) this month. --- this is decided by me and I confirmed with my DAN! doctor.

Also will add CoQ-10 because his OAT test showed his shorting of it. --- this is decided by me and I confirmed with my DAN! doctor.

ok , I will add more next month to track the status.

BTW, I will attend the Greenspan's Floortime annual conference and parent training this week. And then RDI parent training. I want to add more flexibility into my son's behaviour training because ABA is not flexible.

作者: honghong18 时间: 2006-11-7 09:19
标题: re:[QUOTE] And also a...

And also another test called porphyrins test (urine test for marker of heavy metal toxics, latest effective test) from Paris, France (now only this lab do this accurately in the world) to determine the heavy metal marker.

Thanks for sharing. 上述测试是测体内重金属还是排出的重金属?请讲一下尿液收集过程.

作者: pengxc 时间: 2006-11-7 13:34
标题: re:Could you tell me wh...
Could you tell me where to buy suppository DMPS? Thanks a lots!

作者: 加加爸爸 时间: 2006-11-7 22:55
标题: re:CONGRATULATION!WAI...
CONGRATULATION!
WAITING FOR YOUR SON'S MORE INPROVEMENT AND YOUR EXPERENCE SHARING OF RDI & GREENSPAN'S FLOORTIME.

作者: kwenma2 时间: 2006-11-8 01:52
标题: re:[QUOTE][b]下面引用由[u]ho...

下面引用由honghong18发表的内容：

Thanks for sharing. 上述测试是测体内重金属还是排出的重金属?请讲一下尿液收集过程.

it's the first morning urine. only need 10ml. for details, see:
http://www.labbio.net/pages/autisme_envir_intoxication_eng.htm

My Dan! doctor determine to use EDTA and DMPS based on this test.

作者: kwenma2 时间: 2006-11-8 01:56
标题: re:[QUOTE][b]下面引用由[u]pe...

下面引用由pengxc发表的内容：

Could you tell me where to buy suppository DMPS? Thanks a lots!

We got prescription from our DAN! doctor.
我认为排毒药需要医生的处方。千万要在医生的指导下进行!!

作者: kwenma2 时间: 2006-11-8 02:06
标题: re:One thing:If you...
One thing:

If your kids took DMG, please make sure to take it before noon. If take B6, please be sure to take before 4:00pm. Otherwise, kids would be too hyper and affect sleep.

作者: kwenma2 时间: 2006-11-8 02:09
标题: re:another thing:Taur...
another thing:
Taurine and GABA are better to take at bed time because they are good for sleep. First several days, my son took above in the dinner and we felt that he's so tired in the evening and does not want to play. Then we changed to bed time, it's better.

作者: kwenma2 时间: 2006-11-8 02:12
标题: re:[QUOTE][b]下面引用由[u]加加...

下面引用由加加爸爸发表的内容：

CONGRATULATION!
WAITING FOR YOUR SON'S MORE INPROVEMENT AND YOUR EXPERENCE SHARING OF RDI & GREENSP...

Thank you! I hope every kids here can have improvements with both biomedical & behaviour interventions.

I also hope that every parent can get some experiences and then make more progress for their kids.

作者: pengxc 时间: 2006-11-13 11:48
标题: re:在中文网站，能讲中文吗？
在中文网站，能讲中文吗？

作者: kwenma2 时间: 2006-11-14 07:00
标题: re:[QUOTE][b]下面引用由[u]pe...

下面引用由pengxc发表的内容：

在中文网站，能讲中文吗？

I want, but it's too slow for me to type Chinese. It'll take me almost 10 times time than I typing English. However, I want to share my experiences to you. So sorry about that!

我将尽力而为...

作者: kwenma2 时间: 2006-11-14 07:29
标题: re:昨天才从第10届地板时光年会上回来，感触...
昨天才从第10届地板时光年会上回来，感触很深。Greenspan (chairman)and Serena Wierd (vice-chairman) 做了专题报告。Rocki 医生报告中述说她15年前找Greenspan做地板时光时，Greenspan 谈到她小孩将来上大学怎么样，她还感到迟疑。而现在她告诉大家她的小孩将在明年春上大学。怎个过程充满了感情和眼泪。

综合我这几天的学习和会议，地板时光很能调动小孩的积极性，引导他们主动走出
自己的世界。有些小孩对ABA不应，但2-3个月地板时光训练后能主动找大人交流。

我专门去问了一下Serena关于地板时光在中国的情况。了解到目前中国只有香港才有训练
师。不过大家也不要失望，因为地板时光是主要由训练师训练家长，再由家长训练
小孩。有条件的家长可去培训，无条件的家长可买书来自己学习。我还打听到Greenspan的“CHILDREN WITH SPEICAL NEEDS” 有中译版，是台湾发行的。有兴趣的家长可上网寻找。

Also I will post some detailed info from the conference to train you to do floor time later.

作者: feiyangyx 时间: 2006-11-14 12:47
标题: re:[QUOTE][B]Greenspan的...

Greenspan的“CHILDREN WITH SPEICAL NEEDS” 有中译版，是台湾发行的。

这本书的中译本名叫《特殊儿教养宝典》。

作者: 5i52 时间: 2006-11-14 18:36
标题: ！
期待！

作者: kwenma2 时间: 2006-11-15 00:18
标题: re:[QUOTE][b]下面引用由[u]5i...

下面引用由5i52发表的内容：

期待！

我才知道“CHILDREN WITH SPEICAL NEEDS” 有中译版，那本书不错，可以算是Floor Time的教材，值得一读。

你有没有买他的DVD？

他的新书...

Yes, I bought the DVD ( I only boought the first one of those 3).

His new book "engaging autism" is in my bag and I already read 100 pages. It's good! I guess now no one translate it yet.

作者: kwenma2 时间: 2006-11-21 01:22
标题: re:刚从RDI家长2天的培训回来。最近两...
刚从RDI家长2天的培训回来。
最近两周小孩表现有一定的进步。
11/06/06：吃VALTREX 30 天，反应(生疹子，嘴唇肿等现象)都消失。从头一天开
始消化酶由休斯顿的换成了KIRKMAN。我们发现小孩对KIRKMAN的消化酶挺有反应。
因为两月前吃KIRKMAN时，他就有较好的反应。这次不知是VALTREX起作用还是KIRKMAN
消化酶起的作用。我觉得两个都起了作用。因为如果只是消化酶起作用，效果不会
那么明显。
老师反应上课效果好，而且他的情绪也变好。

11/13/06：开始吃抗酵母菌的处方药Sporanox，并且开始EDTA肛拴排毒。
这一周他的进步有：
(1) 开始唱歌：老师唱上句，他接最简单的下句 (依呀依呀哟)。这是他从来没有过
的。
(2) 说话有进步：开始说“主+谓+宾” 的简单句。比如：当早上起来要下楼时，他
主动说“妈妈抱宝宝”。主动语言，而且愿意跟你说。
(3) 开始主动玩与人的游戏。那天晚上主动逗爷爷要爷爷抱，但当爷爷真抱他时，
他又说要妈妈抱。等妈妈抱了他到另外一间屋时，他又跑到爷爷的房间主动说
“爷爷抱”并且笑。如此折腾了几个回合。爷爷躺在床上，他也爬上床躺在爷爷旁
边。直到爷爷说要关灯睡觉(他不想睡觉)，他一下子逃开了。

作者: kwenma2 时间: 2006-11-21 03:16
标题: re:关于FLOORTIME的信息，在中国香港...
关于FLOORTIME的信息，在中国香港有一个点开始做。有感兴趣的家长可问我要，我
就不贴在此，免得有“托”的嫌疑。

作者: kwenma2 时间: 2006-11-21 03:28
标题: re:另外我开了一个新贴专门关于FLOORTI...
另外我开了一个新贴专门关于FLOORTIME。

作者: 田文雁 时间: 2006-11-21 09:56
标题: re:kwenma2:你好！我想了解FLO...
kwenma2:你好！
我想了解FLOORTIME.我的邮箱是：twy958@yahoocom.cn
电话是：１３９７１２７２２６６
谢谢！

作者: kwenma2 时间: 2006-11-23 00:17
标题: re:Here's the online bo...
Here's the online bookstore:
http://www.eslitebooks.com/cgi-bin/eslite.dll/search/book/book.jsp?idx=1&pageNo=1&PRODUCT_ID=2680097327006

特殊兒教養寶典上下 (2冊合售): 促進智力和情緒成長的全新療法

The Child with Special Needs
作者／葛林斯班/ 薇德/ 西門絲 (Greenspan, Stanley I./ Wieder, Serena/ Simons, Robin)
編／譯者／劉瓊瑛
出版社／久周出版文化事業有限公司
出版日期／ 20051201
商品語言／中文/繁體
裝訂／平裝

作者: kwenma2 时间: 2006-11-23 05:57
标题: re:[QUOTE][b]下面引用由[u]田文...

下面引用由田文雁发表的内容：

kwenma2:你好！
我想了解FLOORTIME.我的邮箱是：twy958@yahoocom.cn
电话是：１３９７１２７２２６６
谢谢！

田文雁:
your email address is not correct. <twy958@yahoocom.cn>:
The email is bouncing back.

作者: pengxc 时间: 2006-11-25 12:15
标题: re:看来你是全方位治疗啊，抗病毒，抗霉菌(s...
看来你是全方位治疗啊，抗病毒，抗霉菌(sporanox贵吗？)，消化酶和排毒的药物一起上，希望效果卓著啊！

在感恩节里，谢谢你的爱心和付出。

作者: wildrose 时间: 2006-11-25 22:13
标题: re:I wanna ask kwenma2...
I wanna ask kwenma2 how to connect the Best DAN Doctor who you mentioned on the BBS.

I have Visa of America,recently I wanna go to America with my son for bio-treament .please provide some useful imformation, like how to get connect with doctor, how much expence about the treament ,how long we will stay in Americanote

I noticed you are interested in RDI and Floor time,me too have you finish two-days parent class of RDI

作者: wildrose 时间: 2006-11-25 22:18
标题: re:by the way me Email...
by the way me Email is wildrose-lee@21cn.com

作者: kwenma2 时间: 2006-11-26 14:10
标题: re:[QUOTE][b]下面引用由[u]wi...

下面引用由wildrose发表的内容：

I wanna ask kwenma2 how to connect the Best DAN Doctor who you mentioned on the BBS.

I have Visa ...

I will sent my DAN! doctor info to your email account.

Normally here, you need to make an appointment with the doctor through a phone call. This Dan! doctor take us 3 months to start the initial appointment after we made the phone call.

The initial appointment costs $500--$1500. Normally the first appointment needs you to take your child to their office. They'll have a roughly phyical check and then start some tests. However, for tests we can do in our local place (draw bloods or urine test in home).So only the initial appointment we shall meet with them if we are too far away.

Then after that, you can consult them through either phone or email every 1 months. They charge you for consultation fee from $175-$400 per hour.

It looks like it's possible to see any DAN! doctor in USA. But we still want to get a close by doctor so that we can go to meet them just in case. If you are in china, I think you can do in this way. But at least I think they require you come to see them at least every 1 year I guess. You can "double check" with them to see whether they can do it remotely after their initial appointment.. I used to call doctor Stephanie Cave's office (Stephanie Cave is famouse because she already chelated more than 2500 kids. And she and Amy Holmes previously were cooperative.After Dr. Homles retired, she took over all Dr. Holme's patient.) and they can not do it remotely, the doctor needs to see the kids. I am not sure how often they want to see the kids because I did not get email back from Dr. Cave. However, for my DAN! doctor, she have such flexible option for us to use so that we won't go to her place so often.

Yes, I have done the two days RDI pareny workshop in Texas last week.

作者: kwenma2 时间: 2006-11-27 11:58
标题: re:[QUOTE][b]下面引用由[u]pe...

下面引用由pengxc发表的内容：

看来你是全方位治疗啊，抗病毒，抗霉菌(sporanox贵吗？)，消化酶和排毒的药物一起上，希望效果卓著啊！

在感恩节里，谢谢你的爱心和付出。

谢谢! 我希望通过我的治疗记录能让大家多获得一些信息，从而少走弯路，能让更多的
孩子争取宝贵的时间获得治疗，甚至恢复。我想我的心情与其他家长是一样的。

抗霉菌(sporanox贵吗？): it is covered by insurance. So for us, we only pay copay, maybe $30-$60.

作者: tigerl 时间: 2006-11-27 20:10
标题: re:Kwenma2, Pls also le...
Kwenma2, Pls also let me know the contact of the best DAN. Many thanks!

作者: wildrose 时间: 2006-11-28 15:51
标题: re:thank you,it seems a...
thank you,it seems a big project,but for my child I'll try my best to make the it out .the doctor 's list is very useful.thanks alot ...............

作者: kwenma2 时间: 2006-11-29 01:56
标题: re:上周谈妥，私人雇一个ABA老师到家给小孩...
上周谈妥，私人雇一个ABA老师到家给小孩上课，增加6小时的ABA。本周开始感统个
训3小时。因此小孩的每周个训时间将达到38小时(ABA(30小时在家，老师来)+感统
(3小时)+语言个训(3小时)+FLOORTIME(2小时，私人雇) )。小孩太忙了！私人雇
老师也太贵！！还好州政府负责24小时的ABA 和2小时的语言课，保险公司负责感
统和另外的语言课的80%的经费。

作者: kwenma2 时间: 2006-11-29 02:26
标题: re:EDTA 肛拴排毒的三天大便较稀。我认为...
EDTA 肛拴排毒的三天大便较稀。我认为属正常反应。

这一周小孩说话又有一些进步。能感觉得到。虽然不多。
能主动说“主+谓+宾”的句子增加了一些。而且自己开始造词。昨天语言老师让他
坐在一个绿色的小椅子上帮他穿鞋，他站起来指着旁边的兰色的椅子说“BLUE
CHAIR”。老师好高兴！

最近这两天开始特喜欢爸爸。看见爸爸，马上主动看着爸爸并且笑容满面地喊“爸爸”。
声音特带感情似的。爸爸离开后，便主动跑过去找爸爸，边走边喊“爸爸”。有一
次突然想起要找爸爸，自己跑上楼，嘴里说“找爸爸”，最后在楼上找到了爸爸。

昨天带他到一个语言评估中心去。专家建议我现在应开始侧重将动词加入到他的语
言中。因为他现在说的多数话(英语)都只有名词和形容词。

最近睡觉基本上不错。一晚上能睡9个小时不醒。这是我们以前作梦都奢求的。
但是有一天晚上的杏仁奶内忘记放消化酶，他半夜起来胡闹了10分钟。我下周周末
准备再试一下看是否一样。若是，坚果类的东西最好少吃。

作者: wildrose 时间: 2006-11-29 10:21
标题: re:我想请问一下,你请的ABA老师给小孩子做...
我想请问一下,你请的ABA老师给小孩子做训练是六个小时,除休息之外都关在房间里做一对一的个别辅导吗?

我常在网络上看到说ABA的训练需要有一定的强度每天六小时?可这个六小时是仅仅限于一对一的个别辅导,还是可一理解为每天老师和孩子一起 ABA+游戏+其他+休息=六小时

作者: kwenma2 时间: 2006-11-30 00:53
标题: re:我们小孩的ABA安排是：每一个老师...
我们小孩的ABA安排是：
每一个老师只上2小时。每上15-25分钟(时间长短取决于小孩是否ENGAGE)，然后休
息5-10分钟(老师跟小孩FREE PLAY)。然后又上课.都是一对一。
每天有三个老师来家。

作者: wildrose 时间: 2006-11-30 09:17
标题: re:谢谢您的回复,让我终于对ABA的时间安排...
谢谢您的回复,让我终于对ABA的时间安排有了一个正确的了解,国内的ABA可完全不一样,每个机构每天只给孩子总共一个小时的一对一辅导,最多的也超不过一个半小时.他们是把各种不同类型的活动甚至是感统都作为ABA的内容了.真是误人子弟呀...............

再次感谢.............

作者: kwenma2 时间: 2006-12-2 00:21
标题: re:这两天ABA老师要求家长在上课时间不准进...
这两天ABA老师要求家长在上课时间不准进入房间。儿子哭了两天(每天的6小时ABA课
等於哭下来的)。但从第三天起就没哭了，房间门打开的，婆婆坐在门外。
昨天他看见婆婆要去上洗手间，他居然拉着婆婆手说“婆婆不PEE-PEE”。“PEE-PEE”
是英语的“尿尿”。嘿，他居然能自己用“不”来组句了。

昨晚我们要雇的FLOORTIME的老师第一次上家来面试，儿子很高兴。看着老师并且挥
手说“嗨”。叫他叫老师好，他也叫。情绪也好，眼神也好。说老师要走了，他跟
着我们下楼去主动给老师开门。老师走时跟我说：“你儿子很SOCIAL”。我听了很
高兴。希望他出门在外时也能如此就不错了。我发觉儿子对家里来的客人通常都感
兴趣，眼神也好。但是到外面去玩时就差别很大。不知其它家长有无此感觉？

昨天白天他不愿意睡午觉，昨晚一下破天荒睡了11小时。这是他从来没有过的。他
以前在这种情况下顶多睡10 小时罢了。凑巧昨晚晚饭消化酶不小心多放了一颗，难
道是消化好了晚上肚子舒服，酵母菌得不到养分，从而睡觉好？？我得实验一下。
也许儿子饭量相对于他较大，平时消化酶没给够？

今天早上老师来了，我从房间内退出来，只剩儿子和老师。儿子望着我，我说“妈妈
上班，你PLAY”，他居然喊“婆婆来”。因为昨天是婆婆坐在门外。我很高兴，因
为他能正确地应用语言来表达他的意思了。看来最近他的主动语言终於来到了！！

作者: kwenma2 时间: 2006-12-2 01:17
标题: re:最近带儿子去做了感统评估(以前一直认为他...
最近带儿子去做了感统评估(以前一直认为他没有什么感统方面的大问题，因为他没
有任何奇怪的行为(比如摇头，摇手，大喊大叫))，结果他在MORTOR-PLANNING， TACTILE，
ORAL-MOTOR 等方面还是有问题。於是感统训练开始。

上次参加FLOORTIME 年会，发现FLOORTIME训练师也要将感统的理论插入FLOORTIME的
训练。比如儿子说话不清楚，主要是ORAL-MOTOR不好，所以语言老师训练时要加入
一些按摩(有一些方法在我的FLOORTIME专贴中有)或感统的方法让小孩REGULATE。

感统老师说针对儿子听而不闻的现象，他们将在他作其它感统活动时让他带耳机听
声音的疗法(一种疗法，忘了名字。声音特小，但声音有特殊的频带。耳机与市场上
一般的不一样，但可卖到)。老师说效果会不错。我很期待！

在我看来，感统也很重要。。。

另外昨晚最后商定先开始2小时/每周FLOORTIME。从下周开始。这样下来，儿子的训练每周可
达到39小时。

作者: wildrose 时间: 2006-12-2 01:40
标题: re:我儿子也是没有任何奇怪行为,我们就以...

我儿子也是没有任何奇怪行为,我们就以为他没有任何感统问题,可这样看来也是不一定的呀.
很羡慕你们人在美国,能找到很专业的人为小朋友有作指导和治疗.

有什么好东西记得和大家分享一下啦.............

作者: kwenma2 时间: 2006-12-5 00:03
标题: re:我有一感统刷子操和关节挤压操的说明(我们...
我有一感统刷子操和关节挤压操的说明(我们这儿感统中心给的，我翻译了一下)，是
PDF 文件，不知如何上传？

作者: pengxc 时间: 2006-12-5 11:04
标题: re:kwenma, 你好，请教一点问...
kwenma, 你好，

请教一点问题：(1)你在排毒的“ON DAY”补充更多的矿物质，好象许多人认为“ON DAY"不宜补充矿物质。你的意见如何？(2)porphyrin 尿检查比起通常的重金属尿检查，有何优点？

作者: kwenma2 时间: 2006-12-5 23:36
标题: re:我们DAN！医生要求我们每天都补充矿物质...
我们DAN！医生要求我们每天都补充矿物质。因为我们只是在每晚塞一个肛栓，因此
当天的矿物质补充在下午两点,所以距离晚上塞肛栓也有近8小时。
第二天补充矿物质已经隔了至少10小时。所以不会把刚补充的矿物质全拉出来。

另外PORPHYRIN 测尿液的方法是最新的一种测试，好像是根据新陈代谢的指标来分
析铅，砷和汞的含量是否高。据我们的DAN！医生讲这是比较精确的BIOMARKER。按
我理解的想法是这种方法适用于在排毒前用来得知到底用哪种CHELAOTR(DMPS, DMSA
or EDTA) 好。因为有的小孩用DMPS效果好，而有的用DMSA效果好。因人而异。
因为我们小孩的挑战实验什么都没有排出，很难根据实验结果确定
哪种CHELATOR对他最合适。而尿液的检测法我想用来监控在排毒的整个疗程中哪些
金属被慢慢派出。本人愚见！

作者: pengxc 时间: 2006-12-7 11:46
标题: re:你看DAN医生，门诊，咨询，以及各种检查...
你看DAN医生，门诊，咨询，以及各种检查，费用应该不便宜吧，你的医疗保险会cover吗？Cover多少？

作者: wj2006 时间: 2006-12-7 17:04
标题: re:kwenma2, I want to...
kwenma2,
I want to know the FloorTime,would u pls give me more information?
my E-mail add.:viviajia@sohu.com.
Many thanks!

作者: mch 时间: 2006-12-7 20:39
标题: re:kwenma2,你好我想了解ＦＬ...
kwenma2,你好

我想了解ＦＬＯＯＲＴＩＭＥ，我的邮箱是：tg7110@sina.com

作者: kwenma2 时间: 2006-12-7 21:48
标题: re:[QUOTE][b]下面引用由[u]pe...

下面引用由pengxc发表的内容：

你看DAN医生，门诊，咨询，以及各种检查，费用应该不便宜吧，你的医疗保险会cover吗？Cover多少？

我在前面的帖子里写过。初诊费$1500(两小时)，后来大概每一月电话咨询一次，每
次$200跟她的助手。

我们今年的保险不好，不报网路外的医生的费用。因为去年不知小孩会有
这些花费。从2007年开始我们的保险会报70%的如上费用，而且在DOCTOR
DATA 和大平原试验室的检测也可以报70%或全报。那样的话，花费会少许多。当然
在美国，本来花费水平就高，我估计就这样费用也不低。但是还可以承受，否则简
直不行。我上次去FLOORTIME年会，遇见一朋友说他们在BUTTAR医生那儿待了几个月，
后来转出来了。那里大概每两月重做几乎所有测试，药也要从他那儿买(较贵)，大
概每两月光看BUTTAR就要花$5000。相比我们，看医生加药费两月也就$1000多吧。

也许你会有疑问，为什么我们只跟DAN！医生的助手咨询而不是直接跟DAN！医生咨
询？这是因为该DAN！医生明确告诉我她的咨询费高达$450/每小时是因为她有多个
职称和衔位，按美国的规定出诊的标准就非得那么多。所以她说她跟她的助手是两
个身体，一个脑袋。说我们没必要浪费钱，把钱留给小孩最需要的地方去花。当然
我们也可以每次约她。而且每次咨询之前，助手和她都要联合讨论小孩的情况，订
出方案。开始我对她助手的水平还打疑问，但是咨询两次后发现她的助手的水平比
好多DAN！医生还高。因为我们已经咨询过好几个DAN！医生了。当然我们也
打算隔三岔五地约一下我们的DAN！医生。

想问一下PENGXC，你在美国吗？若在，电话联系更方便。

作者: kwenma2 时间: 2006-12-7 21:55
标题: re:[QUOTE][b]下面引用由[u]mc...

下面引用由mch发表的内容：

kwenma2,你好

我想了解ＦＬＯＯＲＴＩＭＥ，我的邮箱是：tg7110@sina.com

mch & wj2006,

floortime info already sent to your email accounts.

作者: 星空 时间: 2006-12-8 08:30
标题: re:kwenma2：　　你好　　　我...
kwenma2：
　　你好　
　　我也想了解一下ＦＬＯＯＲＴＩＭＥ和DAN!我的邮箱是heliping2002@126.com.Thaankyou.

作者: pengxc 时间: 2006-12-8 12:11
标题: re:Kewenma,在用Valtrex之...
Kewenma,
在用Valtrex之前, 你做过Virus test，检查结果如何呢？

作者: kwenma2 时间: 2006-12-9 00:34
标题: re:[QUOTE][b]下面引用由[u]pe...

下面引用由pengxc发表的内容：

Kewenma,
在用Valtrex之前, 你做过Virus test，检查结果如何呢？

没有作病毒检查。我想原因如下：
(1) 我的小孩的脸上长了很多(15颗左右的WARTS)，证明他肯定有病毒问题；
(2) 在06年4月的DAN！会议上，谈到了Valtrex 和它的作用。一是降低腺莰水平，
从而降低SAH，能够使DNA甲基适当进行；同时，也作为一种抗病毒药物， Valtrex
能够穿透BBB，对于以上提及的两项功能都具有较好的效果，它也是相当安全的。
Dr.McCandless 过去需要进行病毒筛选检查后再开处方用Valtrex ，但是现在她再
考虑这种额外的收益，即使孩子体内没有糇疹病毒， Valtrex 能够有助于甲基路径。

作者: pengxc 时间: 2006-12-9 14:24
标题: re:你是有头脑的人，说的都有道理。但一个叫l...
你是有头脑的人，说的都有道理。但一个叫lerner的医生，做过一些抗病毒研究，发现Valtrex 对于EBV,Herpes 等病毒感染的确有效，但对 HCMV病毒感染基本无效。而对HCMV病毒感染有效的药物是Ganciclovir。所以病毒检查对于用药有一定的指导意义。但目前的病毒检查的确贵了些。

长期以来，一个问题在困扰着医学界。许多正常人体内也有酵母菌，也有病毒感染，但会被机体的免疫系统控制在一个适当的水平，无法兴风作浪。但在自闭症，慢疲症等患者，显然免疫系统出了故障，酵母菌和病毒感染完全失控，大肆作恶。所以，仅考抗病毒药物是不够的，关键是加强机体的免疫能力。

作者: fallout112d 时间: 2006-12-11 09:45
标题: re:Dear Kwenma2:Fro...
Dear Kwenma2:

From your description I kind of guessed who your DAN! doctor is, because I have made an appointment with my DAN! doctor and she cost the same. I am in US too, and I just started this whole process and I am really overwhelmed. Could you contact me through email : meitounaobu@yahoo.com, I would appreciate it very much if you could kindly offer some advice.

Thanks a lot!

作者: kwenma2 时间: 2006-12-14 23:48
标题: re:[QUOTE][b]下面引用由[u]pe...

下面引用由pengxc发表的内容：

你是有头脑的人，说的都有道理。但一个叫lerner的医生，做过一些抗病毒研究，发现Valtrex 对于EBV,Herpes 等病毒感染的确有效，但对 HCMV病毒感染基本无效。而对HCMV病毒感染有效...

“仅考抗病毒药物是不够的，关键是加强机体的免疫能力。”
我补充如下：“胃肠道问题(酵母菌)，病毒问题，免疫系统问题以及重金属中毒是
几位一体的，相互影响。ASD小孩排毒能力差是因为免疫系统混乱而不能与正常小孩
一样正常排毒，但免疫系统混乱又是因为病毒，重金属等问题引起的。因此在清除
病毒，重金属，酵母菌等的同时加强免疫系统的功能，这样才有可能在上述坏因素
被清除的同时，自身机能提高而避免周而复始的病毒，重金属，酵母菌问题。

作者: 宏宇妈 时间: 2006-12-15 13:49
标题: re:您好！我想要一下地板时光的资料，帮我发到...
您好！我想要一下地板时光的资料，帮我发到邮箱里好吗？lvzx@wfctt.com,lvzuoxia@sohu.com,cttwf@126.com.
谢谢！

作者: kwenma2 时间: 2006-12-16 00:12
标题: re:最近我给孩子加的课多，昨天又去了一次FL...
最近我给孩子加的课多，昨天又去了一次FLOORTIME，培训师指导我给孩子作，然后
跟她聊，觉得还有一些收获。她告诉我要随着孩子的情绪而调整我的声音，音调，
面部表情，说话节奏等。而且要随时读出孩子的面部表情和动作来猜测孩子的想法
而调整自己的策略，从而达到最佳效果。希望能用在实际生活中。她说昨天我与孩
子互动的CIRCLE数又比上次多了(这是我第三次去她那里)。

但他最近2周因排毒在眼神和注意力，大便方面有退化，但觉得这两天又稍好一些。

语言有一些进步，能发“S”，“K”， “G”， “W”音了。比如 “五”，
“MILK”， “BOOK”， “PINK”， “STAR”， “PLEASE”等等。
当他需要我开门时，能正确说出“MOMMY OPEN DOOR”。

正在等尿液结果看是否继续EDTA还是开始DMPS。

作者: kwenma2 时间: 2006-12-19 02:00
标题: re:[QUOTE][b]下面引用由[u]宏宇...

下面引用由宏宇妈发表的内容：

您好！我想要一下地板时光的资料，帮我发到邮箱里好吗？lvzx@wfctt.com,lvzuoxia@sohu.com,cttwf@126.com.
谢谢！

already done. Do you get it?

作者: kwenma2 时间: 2006-12-19 02:12
标题: re:12/04/06 phone consu...
12/04/06 phone consult result:
wait for urine test result then decide whether to continue using EDTA or changing to DMPS.

after 12/04, my son has some regression and stool is bad. So push active charcoal(活性炭) to 4-6 capsule per day. Now we give him 4 cap per day.

About 2 weeks of regression, it's getting better now after he had something sticky and watery out in his stool. But still not at his best condition.

12/16/06 starting transfer factor (转移因子). Hopefully it will help his immune system better. Now he already has taken colostrum, milk thristle.

作者: tiaoma 时间: 2006-12-20 16:52
标题: re:kwenma2:您好,请把地板时光的资料...
kwenma2:您好,请把地板时光的资料发给我一份,好吗?
gcxtiao@yahoo.com.cn

作者: kwenma2 时间: 2006-12-21 06:05
标题: re:明天下午要带儿子去抽血，心情很难受。想着...
明天下午要带儿子去抽血，心情很难受。想着他痛苦挣扎的样子，我真于心不忍。
可怜的儿子！明天要作的测试包括肝功肾功检查。另外还作全套免疫功能(包括病毒)检测。
http://www.immuno-sci-lab.com/test_111-115.pdf

作者: pengxc 时间: 2006-12-21 11:47
标题: re:可怜天下父母心，关爱世上自闭儿！
可怜天下父母心，关爱世上自闭儿！

作者: fallout112d 时间: 2006-12-22 09:05
标题: re:kwenma2 could you pl...
kwenma2 could you please send me a copy of floor time. My email is meitounaobu@yahoo.com, thanks a lot!

作者: babymine 时间: 2006-12-22 12:44
提示: 作者被禁止或删除内容自动屏蔽

作者: pengxc 时间: 2006-12-23 11:33
标题: re:kwenma,病毒检查的费用多少...
kwenma,

病毒检查的费用多少？

我相信病毒在自闭症中扮有重要角色。因为病毒感染很容易进入脑部，而且极难清除。长期以来，科学家最头痛的就是研发抗病毒药物，大部份是无功而返。现在抗病毒药物在自闭症中效果有限，主要原因是这些药物的抗病毒能力有限。

作者: 妮子 时间: 2006-12-23 19:02
标题: re:kwenma2请发给偶FLOOR...
kwenma2

请发给偶FLOORTIME的资料，非常感谢。。。

guying@ssaocorp.com

作者: wwg 时间: 2006-12-24 00:16
标题: re:kwenma2: 你好，想请...
kwenma2:
你好，想请问一下怎样才可以买到排毒的药？

作者: kwenma2 时间: 2006-12-25 13:22
标题: re:[QUOTE][b]下面引用由[u]pe...

下面引用由pengxc发表的内容：

kwenma,

病毒检查的费用多少？

我相信病毒在自闭症中扮有重要角色。因为病毒感染很容易进入脑部，而且极难清除。长期以来，科学家最头痛的就是研发抗病毒药物，大部份是无功而返。现在抗病毒药...

具体的不太清楚，听医生说过一次，可能是$700美金吧？

作者: kwenma2 时间: 2006-12-25 13:25
标题: re:[QUOTE][b]下面引用由[u]ww...

下面引用由wwg发表的内容：

kwenma2:
你好，想请问一下怎样才可以买到排毒的药？

我们都是医生开的处方，然后在Hopewell phamacy 拿的药。
http://www.hopewellrx.com/index.shtml

我不知道如果没有医生处方是否还能买到排毒的药？我想网上有朋友知道。

作者: pengxc 时间: 2006-12-26 12:37
标题: re:据我知，在美国，DMSA胶囊，EDTA栓...
据我知，在美国，DMSA胶囊，EDTA栓剂，ALA不要医生处方，其他好象都需医生处方。自闭症治疗是复杂的过程，最好有医生指导。

作者: kwenma2 时间: 2007-1-3 01:13
标题: re:12/25/06: 正式开始SCD DI...
12/25/06: 正式开始SCD DIET(特殊碳水化合物饮食疗法).

开始的第一周，肚子长得很大，睡觉半夜翻滚厉害，而且醒了几晚。希望是酵母菌的坏死反应。详见http://www.pecanbread.com/badreaction.html

但是感觉语言有较大的进步。能自己主动说“爷爷出去了，妈妈抱宝宝找爷爷。”，而且你说什么，他也常跟你说。能主动地应用功能性的语言(mommy open door)，这一点让我感到欣慰。而且词汇量有涨劲。能说apple, egg, banana, cake, deer, tiger, eye, mouth, ear, nose.

作者: pengxc 时间: 2007-1-7 14:12
标题: re:Kwenma,Happy New...
Kwenma,

Happy New Year!

你孩子PORPHYRIN 尿液测试的结果如何?根据结果,你们的DAN！医生认为哪种CHELAOTR(DMPS, DMSA or EDTA) 好?

作者: kwenma2 时间: 2007-1-10 00:25
标题: re:今天刚刚和DAN！医生谈过，根据尿液测试...
今天刚刚和DAN！医生谈过，根据尿液测试结果，在用了6周的EDTA肛栓后，从今天起
开始用DMPS的肛栓形式排毒。这是小孩经过半年的生物疗法后正式启动排汞程序。

同时SCD饮食疗法暂时去掉坚果，只吃蔬菜，水果和肉类。等过几周后再加入坚果。
DAN！医生说，才开始SCD，我们小孩的症状表明肯定是DIE-OFF反应。

作者: kwenma2 时间: 2007-1-10 00:45
标题: re:[QUOTE][b]下面引用由[u]pe...

下面引用由pengxc发表的内容：

Kwenma,

Happy New Year!

你孩子PORPHYRIN 尿液测试的结果如何?根据结果,你们的DAN！医生认为哪种CHELAOTR(DMPS, DMSA or EDTA) ...

在测试结果中，是这样写的：

High 5-carboxyporphyrin+ High Coproporphyrin + High 6-carboxyporphyrin
High Precoproporphyrin + High Coproporphyrin
---> High levels in Mercury (Hg)

High Uroporphyrin + High 7-carboxyporphyrin --> High levels in Arsenic (As)
and certain organic chemicals such
as polychrorinated Biphenyl

High Coproporphyrin ---> High levels in Lead (Pb)

医生认为汞和铅中毒明显，所以选用DMPS较合适。但CAL-EDTA拉铅效果好，所以先用
CAL-EDTA排一下铅。因为DMPS最开始也是先拉铅出来。但我们在CAL-EDTA四周后的
尿液中并没有看见铅排出多少。但小孩要灵性一些，而且语言有进步。
今天开始用DMPS。

作者: pengxc 时间: 2007-1-10 13:14
标题: re:这里一篇新文章讲到Porphyrins...
这里一篇新文章讲到Porphyrins 与自闭症的关系，引起很大关注。特别转贴在这里。文章主旨是：与正常孩子比，自闭症孩子体内有高水平的Porphyrins,这些Porphyrins的代谢物与大脑中的受体结合，导致自闭症。自闭症孩子体内有高水平Porphyrins,是因为重金属阻断了Porphyrins的代谢途经，导致Porphyrins升高。通过排出重金属，可以降低Porphyrins的水平，治疗自闭症。
------------------
Heavy metals may be implicated in autism
27 May 2006
From New Scientist

URINE samples from hundreds of French children have yielded evidence for a link between autism and exposure to heavy metals. If validated, the findings might mean some cases of autism could be treated with drugs that purge the body of heavy metals.
Samples from children with autism contained abnormally high levels of a family of proteins called porphyrins, which are precursors in the production of haem, the oxygen-carrying component in haemoglobin. Heavy metals block haem production, causing porphyrins to accumulate in urine. Concentrations of one molecule, coproporphyrin, were 2.6 times as high in urine from children with autism as in controls.
Autism is thought to have a number of unknown genetic and environmental causes. Richard Lathe of Pieta Research in Edinburgh, UK, says he has found one of these factors. "It's highly likely that heavy metals are responsible for childhood autistic disorder in a majority of cases," he claims. The study will appear in Toxicology and Applied Pharmacology.
Lathe says these porphyrin metabolites bind to receptors in the brain and have been linked with epilepsy and autism.
The researchers restored porphyrin concentrations to normal in 12 children by treating them with "chelation" drugs that mop up heavy metals and are then excreted. It is not yet known whether the children's symptoms have eased, but Lathe cites anecdotal reports suggesting the drugs might do some good.
From issue 2553 of New Scientist magazine, 27 May 2006, page 21
_________________

作者: pengxc 时间: 2007-1-10 13:26
标题: re:请问你的porphyrin test 是...
请问你的porphyrin test 是在哪里做的？美国还是法国？能告诉试验室的名字和网址吗？价格如何？谢谢！

作者: kwenma2 时间: 2007-1-11 00:27
标题: re:[QUOTE][b]下面引用由[u]pe...

下面引用由pengxc发表的内容：

请问你的porphyrin test 是在哪里做的？美国还是法国？能告诉试验室的名字和网址吗？价格如何？谢谢！

法国:
http://www.labbio.net/pages/autisme_eng.htm
http://www.labbio.net/pages/autisme_envir_intoxication_eng.htm
价格: about US$100.

作者: kwenma2 时间: 2007-1-12 23:52
标题: re:作了两周SCD，才发现我们加入坚果太早。...
作了两周SCD，才发现我们加入坚果太早。DAN！送来了步骤。有兴趣的家长可参考：
http://www.pecanbread.com/foodprep.html#intro
请一定按步骤实施 (from "Intro diet" to "stage 1" to "stage 2"....)

其实半年前第一次跟一位DAN！谈话时，她就极力强调禁食直接就进入SCD。现在想
来当时就应该作。她有一个儿子就是ASD，现以13岁了。所以她有很多实际经验。希
望家长能认真阅读网页http://www.pecanbread.com/

有些小孩在SCD禁食后ASD就好了。家长都认为禁食不容易。但一定要看到小孩还是
有很多可以吃的东西。从可以吃的东西入手，路子就会宽一些。而且小孩越小越容
易操作。这是我这段时间的体会。

作者: pengxc 时间: 2007-1-14 03:27
标题: re:kwenma,做porphyrin...
kwenma,
做porphyrin test 的标本，你用何种邮寄方式寄往法国，在邮局需申报内容吗？另外，Hopewell 生产的DMPS栓剂价格如何？

作者: kwenma2 时间: 2007-1-16 00:43
标题: re:Fedex 寄往法国. no 申报内容....
Fedex 寄往法国. no 申报内容. 保险公司报，所以只付大约US$60吧？

作者: kwenma2 时间: 2007-1-22 11:13
标题: re:从昨天起停掉CANDEX，改用BERBE...
从昨天起停掉CANDEX，改用BERBERINE辅助控制酵母菌。

作者: kwenma2 时间: 2007-1-22 11:46
标题: re:这几天儿子有一定的联想力和记性了。当我跟...
这几天儿子有一定的联想力和记性了。当我跟他玩发声照片时，他看见照片上的玩
具鸭和玩具洋娃娃，便跑去拿我们家的实物玩具鸭和玩具洋娃娃来给我。当他看见
他爸爸穿了一件白衣服时，他说LORI穿白衣服(他的老师前几天恰巧穿了一件白衣服
)。当他看见地上铺了白雪时，说计算机的SNOWMAN。当我们从麦当劳回家时，他指
着身后说麦当劳，意思是才去了麦当劳。

另外今天惊奇地发现儿子居然能唱5首歌。虽然是跟着我唱而且口齿不清晰。

作者: kwenma2 时间: 2007-1-23 00:48
标题: re:接着说他的不足：最近大便依旧不好。眼神也...
接着说他的不足：最近大便依旧不好。眼神也不好。但是上课时的眼神还不错。他好
像喜欢上课了。

关于他的肠胃问题，上周去看了有名的Tim Buie 医生。准备给他作两项测试(其中
有一项是Dr. Wakefield 作的)，再决定如何处理。
http://www.autismndi.com/news/display.asp?content=Resources&shownews=20040728195163

作者: kwenma2 时间: 2007-1-25 00:31
标题: re:前天喝奶时，奶嘴放成小号的了。儿子喝了一...
前天喝奶时，奶嘴放成小号的了。儿子喝了一下，就拿给我们，说“妈妈X”。我们
没听懂最后那个字，於是认为肯定是他嫌奶冷，便去热了一下，再拿给他。他喝了
一口，又拿给我们，说同样的话。我说：“奶热热的！” 他说：“NO！”我们再仔
细一想，原来是奶嘴的型号错了。从这件事发现他还是有进步，他在发现有问题时
能主动向你提出，只是语言表达不来。(语言表达还要多教！) 以前他遇到同样的事
时，根本无反应，还是不断的吸奶直到大人发现他喝得特慢才发现问题。

他现在的固定行为较严重。主要表现在好多事别人不能作，非要妈妈作。如果妈妈
不在，就要爸爸作。如果爸爸也不在，才要婆婆作。。。总之有亲疏等级比较的观
念。

前天去家附近的健康俱乐部买了一年会员卡，准备经常带他去游泳。我们已经带他
去了几次了，他很喜欢。他属於那种不好动的类型，所以好不容易发现他有喜欢的
运动，立马化钱准备长期坚持带他运动。几次下来，在救生衣的帮助下他能向前游
十多米了，而且很高兴。游泳又能让他睡眠好，有食欲，又高兴，有表情，游泳时
又愿意跟你互动，锻炼他的肌肉，真是一举几得。但愿他不是只喜欢玩几天！

今天拿到了物理理疗(PHYSICALTHERAPY)的评估报告，说明他大肌肉运动能力差，平
衡力差，腹部肌肉，上臂肌肉差。星期一我们刚跟一个儿童物理理疗中心谈妥，准
备每周至少带他去一次，以后逐步增加次数。从二月份开始。

作者: kwenma2 时间: 2007-1-25 00:43
标题: re:从这周起，我们去掉了7。5小时的ABA换...
从这周起，我们去掉了7。5小时的ABA换来了5小时的地板时光。这两天地板时光的老
师来后，儿子跟她们互动很好。反观ABA课，儿子显得疲塌，无激情。可能有些厌倦
ABA的方式吧？或许喜欢年轻漂亮的老师(地板时光的老师就年轻漂亮， ABA的老师
较老)？他最喜欢他的一个语言老师DANA(年轻漂亮)。每次到中心去一看见那个老师
便DANA，DANA 地叫个不停，兴奋地主动去打招呼。喜欢之情溢于言表。下周一个新
的ABA老师来(顶替前一个ABA老师--生小孩去了)，希望他喜欢。

作者: yy1359 时间: 2007-1-25 17:47
提示: 作者被禁止或删除内容自动屏蔽

作者: kwenma2 时间: 2007-1-27 23:36
标题: re:这几天孩子说话的确有进步。说话的品种多了...
这几天孩子说话的确有进步。说话的品种多了，话音清楚了一点。昨天我和他画画，
他主动说“妈妈 draw big eyes”。因为他发音不清晰，我没搞懂画什么。他看我不知道，便两只手指着自己的眼睛。原来是要我画大眼睛。

作者: kwenma2 时间: 2007-1-31 02:06
标题: re:SCD DIET 是指一种特殊碳水化合物...
SCD DIET 是指一种特殊碳水化合物饮食疗法。主要是不吃含大量碳水化合物的食物，
但可吃肉，大部分蔬菜，水果等。在网上：
http://www.breakingtheviciouscycle.info/legal/legal_illegal_a-c.htm
可查找哪种食物合格，哪种食物不合格。
它对於一些有某些肠胃道问题的ASD小孩特有效。因为只是限制饮食，所以无害，可
试用。在试用时要严格按照部骤，详细见：
http://www.pecanbread.com/foodprep.html

作者: kwenma2 时间: 2007-1-31 03:43
标题: re:儿子昨天去评估，恰巧去了之后他开始发烧。...
儿子昨天去评估，恰巧去了之后他开始发烧。整个人没精神，身体发软，医生想跟他
玩，他也没兴趣。没有互动。医生检查他身体时，他不愿意，一直说“ALL DONE”。
不过医生说感觉他的眼睛对视和语言有较大的进步。医生也意识到儿子不舒服。这
样下来，肯定还是AUTISM。听医生言外之意，如果儿子今天能有一些互动，那就会
是PDD-NOS。当然最近儿子的互动方面绝对不是今天这样。不过我们本来就知道他肯
定还是ASD，不管是AUTISM还是PDD-NOS。去医生那儿主要是想通过医生定出儿子在
上幼儿园后的干预计划，要求学校提供多少免费服务。医生建议学校提供每周25小
时的1对1的ABA(包括15小时的家庭ABA---老师到家来上课)，3小时的语言课，3小时
的感统课，3小时的物理理疗。这对於我们跟学校交涉有很大的好处。因为上周我们
去看了一下学校，全天课(9：00-3：00)，只有1个半小时的一对一ABA，其余是一
对一的活动或小组活动。学校申称他们全天的课都是用ABA的模式。但医生说对我儿
子来说需要真正的每天一对一ABA。据统计，如果每周进行40小时的一对一干预(主
要是ABA)，小孩几年后有50%的可能性进入正常小学；如果每周进行30小时的一对一
干预，小孩几年后有30%的可能性进入正常小学；如果每周进行20小时的一对一干预，
小孩几年后有10%的可能性进入正常小学。所以高密度的一对一干预很重要。当然我
们还额外私人雇用老师做ABA和地板时光。

还好2月还要到另外一个医生那去评估。看他到时表现有无进步。

上周去做FLOORTIME，效果出奇地好。他自己发起活动，并且有很多互动，CIRCLE 数
很多，一个活动接一个活动(其中还有假扮游戏--给洋娃娃穿衣服)，训练师大为高
兴。而且看得出他的MOTOR PLANNING 有一些起色，活动中带出了一点自己的感情，
能有一点解决问题(PROBLEM SOLVING)的能力了。

昨天晚上儿子发烧，我和他爸想给他量体温，他不愿意，我就自己先量，说妈妈量
后就该他了。等我假装量完后，将温度计给他，他说“爸爸量”。於是我们只得让
他爸量。等他爸假装量完后，将温度计给他，他说“爷爷量”。当时只有他，他爸
和我在场，於是我说“爷爷睡觉”。你猜他怎么说？他说“奶奶量”。我说“奶奶
睡觉。你量。”，他说“NO 量”。整个过程让我体会到了他的思维过程以及与他
交流的乐趣。我真高兴！

作者: kwenma2 时间: 2007-1-31 04:03
标题: re:今天早上跟DAN！医生又咨询了一次。主要...
今天早上跟DAN！医生又咨询了一次。主要谈免疫测试结果。从测试来看，主要是儿
子肯定不能吃面食品(Gliadin is too high)。其次是IgG Immunoglobulins和 NK cell Activity指标不正常。所以医生叫做HBOT, 吃Pycnogenol (herb, suggest from clair lab
http://www.protherainc.com/prod/proddetail.asp?id=PYC6).主要针对提高免疫力，过敏和注意力。

另外SCD DIET 可进入第二步了。看SCD是否有效，至少让我们试2-3个月。

作者: kwenma2 时间: 2007-2-3 01:07
标题: re:明天和后天去参加两天的2007 AUTI...
明天和后天去参加两天的2007 AUTISM CONFERENCE，由Association for Behavior
Analysis International 主办。主题是行为疗法方面的进展与挑战。

The Association for Behavior Analysis International is sponsoring the 2007
Autism Conference, Progress and Challenges in the Behavioral Treatment of
Autism, to be held at the Sheraton Hotel in Boston on February 2-4, 2007.
Planned with the support of ABA International's Autism and Parent Professional
Partnership Special Interest Groups, this conference will expose providers
of home and school-based behavior analysis services, parents and family
members, caregivers, researchers, teacher trainers, and students to the
most current, scientifically validated information about behavior analysis
in autism treatment.

The single-track conference will feature 14 invited presentations by prominent
researchers and authorities on the treatment of autism and representatives
from the May Institute and the New England Center for Children (past SABA
Awardees for Enduring Programmatic Contributions to Behavior Analysis).
The conference will also provide a forum for over 170 autism researchers
to share their recent work in two poster sessions. The conference will close
with a Round Table discussion by representatives of ABA International's
organizational members. The conference will provide many opportunities for
personal exchange with researchers, presenters, and organizational members
of ABA International.

作者: heping_zhu 时间: 2007-2-3 12:03
标题: re:Kwenma: 如果方便，非常希望您会后...
Kwenma: 如果方便，非常希望您会后能再提供“2007 AUTISM CONFERENCE”的会议内容。我想对我们国内家长来说，都是渴望了解的。如需要翻译，可以由我来承担。我的邮件地址为： Tomzhu1974@126.com, 或heping_zhu@hotmail.com
Best.

作者: kwenma2 时间: 2007-2-6 02:06
标题: re:非常感谢朱先生的主动热情的义务服务。这次...
非常感谢朱先生的主动热情的义务服务。这次两天的会议(ABA 主办方关于AUTISM 的主题
会)主要集中在对自闭症的关注，挑战以及如何在美国给ASD小孩提供更好的PROGRAM。
CARD (一个ASD SERVICE 机构提出的CURRICULM(ABA教案)很有吸引力。她们会在今
年出版。但会议上并没有详细的ABA技术讨论。我想这些会在ABA年会(五月在加州)上
更多。会议的资料将在稍后以EMAIL形式通知我们，然后我们可上网看。到时候我会
将CARD的SEMINAR SLIDES 发给朱先生。这次会议最后一个演讲者是Catherine Maurice,
她是ABA教案"Behavioral Intervention For Young Children with Autism: A Manual for Parents and Professionals"和“LET ME HEAR YOUR VOICE"的作者，她的两个小孩在上17年前都被
诊断为ASD，但都康复了。

作者: heping_zhu 时间: 2007-2-7 04:29
标题: re:谢谢Kwenma与我们分享美国自闭症康复...
谢谢Kwenma与我们分享美国自闭症康复训练的最新信息。希望我们的共同努力能为孩子们创造一个较好的未来。

作者: kwenma2 时间: 2007-2-7 06:15
标题: re:Some friends asked m...
Some friends asked me to put this here because they can not access the website HTTP://WWW.PECANBREAD.COM I posted it before.
==========================================================================================
this is the info from the pecanbread about the SCD diet's intro step and the other stages.

Here's most info about the SCD siet.

As I do this for my son, even if some food is in this legal list, I still do not give to my son because he's allergic to it.

And I am not sure whether you can go to the websitewww.breakingtheviciouscycle.info/
to see which food is legal and which is illegal for SCD diet.

========================================================================================
Transitioning a Child to the SCD

Broadly speaking, there are two ways to go about this: cold turkey or gradual. What you choose depends on your child and your circumstances. However, regardless of what you decide, here are some tips that can make the transition a smooth one.

* Attitude is key. Kids pick up on our lack of confidence, our nervousness, our uncertainty. Before beginning the diet, take a moment to get excited about what you are about to do. Believe, without question, that it will reap all the great rewards you have been hearing about. Do not think about how you are "depriving" your child, instead become enthusiastic for how you will be giving your child the gift of health. Accept that it might be hard at first, that your child might resist, but that you will stand firm and confident that this is the right road for you to take.

* In most cases children adjust and accept the diet more easily if the whole house is SCD™ and there are no illegals to be had. In addition to eliminating the the risk of infraction, without any illegals available there is less chance that the child will go on a hunger strike hoping you will cave in.

* Don't be surprised and alarmed if behaviours and stools get worse before they get better. Usually this is die-off, an indication that the diet is helping your child. If the stools and behaviours continue beyond 10 days consider possibilities other than die-off such as too much fruit.

* Transitions and changes in routine are difficult for many ASD children. It could help to spend a few days (or a week, whatever is appropriate for your child) explaining the changes you will be making in their food choices beginning on a specified day. Again, convey a positive attitude about this. When that day comes, you should have the food selection look as enticing as possible.

* For some children, it could help to explain why you are doing SCD™. If he/she has overt diarhea, mushy stools, or constipation, a simple explanation could be that this diet helps people's bellies feel better, or makes their poops healthy. For those without overt digestive problems, an explanation could be that the SCD is a healthy diet that the family is going to follow.

* While many parents ultimately decide to keep their child on SCD™ indefinately, some children, when starting the diet, feel better if they know that they won't be giving up their beloved foods forever. You could explain that you are going to try this diet for X amount of time (3 months, 3 years etc.) and then you'll decide about whether or not to continue. (At which point many kids feel better and won't mind staying on it.)
One mother made a 100-year timeline, assuming a 100-year lifespan, and showed what 2 years looks like. Then she explained that if they followed the diet for that tiny period of time, her son would gradually be able to eat more and more different foods. If they didn't do the diet, he would likely remain intolerant to many foods and would spend the rest of his life having to go everywhere with special foods.

* Some parents have reported that, for hunger strikers, it helps to have as wide a variety of legal foods readily available. Eventually the child will choose something. The one thing to be careful of with this approach is that you don't keep offering your child a new food everytime he rejects something. This pattern might lead a child to believe that he can continue to hold out until you start offering illegals. It is best to, physically or verbally, lay out all their choices at one time.

* Those familiar with ABA techniques have reported using a social or toy-based rewards system for encouraging their child to eat legal foods.

* Those who have been previously using food-based rewards systems in ABA programs should phase those out prior to starting SCD™ in favor of non-food rewards.

* It is well-known that there are few pre-manufactured legal foods. Consult elaineschildren or the recipe section of this website to find a good substitute for any pre-manufactured foods that your child will be giving up. For example, legal sausage can often be made up by a butcher or by following the recipe in Lucy's Cookbook. However, some kids initially find these substituted foods to be unacceptable. Attempting the switch only makes them upset or angry at the diet. For these children, it is best, obviously, to find entirely new foods that they will like.

From Elaine:

So often those first weeks are so very perplexing and worrisome. But when you think that you are giving the child what is probably the most nutritious diet in the world - the kind of food to which man's biological machinery is truly compatible with, and when you think that the entire world of trillions of microorganisms (bacteria and yeast) are undergoing dramatic transformations, hang in there, try not to worry (you are doing only good) and you will see the light at the end of the tunnel.

作者: kwenma2 时间: 2007-2-7 06:16
标题: re:Continue the SCD die...
Continue the SCD diet:
========================
ASD Intro Diet

Since the many of the children with ASD were casein free before beginning the SCD™, here is a list of suggested foods for the intro diet. The intro diet should be followed for 2-5 days.

Chicken broth
--Chicken broth with pureed cooked carrots
--Chicken broth with chunks of cooked chicken
--Chicken broth with cooked carrot sliced into little "coins"
--Chicken broth with "chicken balls" made from ground chicken
--Chicken broth with "noodles" made from beaten eggs cooked omelette-style into a "crepe" and then rolled up and thinly sliced
--Chicken egg-drop soup

Chicken pancakes
Roasted chicken

Roasted turkey

Beef broth
--Beef broth with meatballs made from ground beef

Hamburger patties

Eggs
--scrambled
--poached
--hard-boiled
--soft-boiled
--sunny side up
--deviled eggs made with homemade mayo

Homemade jello (made from unflavored real gelatin and purple and/or white grape juice)
Made in a shallow pan and cut with shaped cookie cutters or into cubes

Beyond the Intro Diet

This chart is a guide to introducing foods after the Intro Diet.
As with all things, individual tolerance to foods will vary.
This guide is to reinforce the need for gradual introduction of new foods into the diet.

1. Never feed a child a food which has previously caused an anaphylactic reaction.

2. Introduce new foods one at a time.
   This will make it possible determine whether each new food can be tolerated.

3. This chart is based on the healing process that is taking place.
   It is not based on a timeline.
   Some people may be able to add new foods more quickly than others.

4. This list of foods is not all inclusive.
   Please check BreakingTheViciousCycle.info for a list of legal/illegal foods.

5. Oil/butter may be used to prevent sticking when preparing pancakes.
   Oil/butter may be used in any recipe that calls for it.
   Oil/butter can also be used when cooking meat or vegetables.

   The suggestion to avoid frying foods early in the diet was made due the difficulty
   that kids on our list were having with deep fried foods.

* Note: For those with strictures (narrowed ileums) certain foods may aggravate the narrowed portions of the ileum.
These foods include raw grapes, lots of raisins, spaghetti squash, celery, vegetable and fruit peels, whole nuts (nut flour or nut butter seems to be okay). Please also see Obstructions and Resections from Elaine's website.

Again, this chart was created in an effort to help parents remember to introduce foods slowly and feed only well-tolerated foods.

Stage 1

FRUITS
Peeled, deseeded & well cooked
Apple
(applesauce)
Pear
(pearsauce)
Raw
Banana
(very ripe with spots)

VEGETABLES
Peeled, deseeded & well cooked
Carrot
Green Beans
(Especially French Cut )
Spinach
Zucchini

MEATS
Boiled/Broiled

EGGS
Any Style

Stage 2

FRUITS
Peeled, deseeded & well cooked

Apricot
Peach
Pineapple
Plum
Tomato

Raw
Avocado

VEGETABLES
Peeled, deseeded & well cooked

Acorn Squash
Artichoke-french
Asparagus
Buttercup Squash
Butternut Squash
Cucumber
Garlic
Mushroom
Peppers
Pumpkin
Watercress

MEATS:Baked

NUTS: Nut Butters, Nut Milk

Stage 3

FRUITS
Peeled, deseeded & well cooked

Blueberry
Blackberry
Cherry
Date
Elderberry
Fig
Gooseberry
Kumquat
Passion Fruit
Raisin
Strawberry

VEGETABLES
Peeled
(as appropriate),
& cooked

Beet
Bok Choy
Broccoli
Brussels Sprouts
Cabbage
Cauliflower
Celeriac
Celery*(see note)
Chinese Cabbage
Collards
Eggplant
Kale
Leek
Lettuce
Lima Beans-Fresh
Olive
Onion
Parsley
Pea
Peppers
Rhubarb
Shallots
Snow Peas
Spaghetti Squash*
Sugar Snap Peas
Swiss Chard
Watercress

MEATS:Pan Fried
NUTS:Nut Flour

Stage 4

FRUITS
Raw, peeled
* (see note above the chart)

Apple
Apricot
Canteloupe
Elderberry
Grapefruit
Grapes* (see note)
Kiwi Fruit
Kumquat
Lemon
Lime
Mango
Orange
Papaya
Passion Fruit
Peach
Pear
Persimmon
Pineapple
Pomegranate
Plum
Tangerine
Tomato
Watermelon

VEGETABLES
Raw

Bok Choy
Broccoli
Cabbage
Carrot
Cauliflower
Celeriac
Celery
Chinese Cabbage
Collard
Cucumber
Daikon Radish
Kale
Leek
Lettuce
Mushroom
Olive
Onion
Peppers
Radish
Rhubarb
Shallots
Snow Peas
Sugar Snap Peas
Spinach
Swiss Chard
Watercress

MEATS
Battered/Deep Fried

BEANS
Cooked
(prepared according to BTVC)

Haricot Beans
Lentils
Lima Beans
Navy Beans
Split Peas

Stage 5

FRUITS
Raw

Apple
Apricot
Blueberry
Blackberry
Cherry
Date
Elderberry
Fig
Gooseberry
Grapes
Olive
Peach
Pear
Persimmon
Plum
Raisin
Strawberry
Tomato

MEATS
Dried Jerky

NUTS
Whole Nuts

BEANS
Cooked
(prepared according to BTVC)

Black beans
Kidney Beans

---------------------------------------------------------------------
Sample Menu

Breakfast ideas:

Banana pancakes
Pear pancakes
Butternut squash pancakes
Nut butter pancakes
Nut butter cake/muffins
Scrambled or boiled eggs
Dairy free smoothies
Pear sauce

Lunch and Dinner ideas:

Broiled hamburger patty
Baked Chicken
Chicken Pancakes
Sneaky muffins with chicken w/o flour
Chicken carrot soup
Well steamed carrots, pureed if preferred
Mashed butternut squash
Squash French fries
Carrot curls/chips
Egg pizza
Snack ideas:

Nut butter cake w/o flour
Pear sauce
Apple sauce
Ripe bananas
Squash French fries
Carrot curls/chips
Nut butter muffins
Boiled eggs
Dairy free smoothie

作者: kwenma2 时间: 2007-2-7 06:18
标题: re:Top 10 SCD FAQs...
Top 10 SCD FAQs

What is the Specific Carbohydrate Diet™?

The Specific Carbohydrate Diet ™ is a scientific diet based on chemistry, biology and clinical studies. It is detailed in the book, Breaking the Vicious Cycle, written by Elaine Gottschall, M.Sc..

The selection of foods that are allowed on the Specific Carbohydrate Diet ™ is based on the chemical structure of these foods. Carbohydrates are classified by their molecular structure. The allowed carbohydrates have a molecular structure that is small enough to be transported across the surface of the small intestine into the blood stream. These carbohydrates do not need to be broken down by various processes of the digestive organs such as the pancreas or the intestinal cell surface enzymes.

The Specific Carbohydrate Diet ™ was very successfully clinically tested for over 50 years by Dr. Haas and biochemist Elaine Gottschall.

The Specific Carbohydrate Diet ™ was designed for patients with intestinal diseases, but has been "found" by parents of children with autism. The kids on the diet are doing very well.

In order to effectively implement the Specific Carbohyrdate Diet ™, it is necessary to read Breaking the Vicious Cycle. The diet is not merely one of substituting one group of foods for another. The diet begins with a limited number of foods and gradually adds more foods as the intestinal tract heals.

How does the SCD ™ work?

When the diseased intestines are inflamed from the effects of dysbiosis, they cannot break down the molecules that are too large to be transported across the small intestinal surface into the bloostream. Instead of entering the bloodstream, the undigested starch and sugar molecules serve as a continual source of food for bacteria and fungi. The premise of the SCD ™ is to remove all sources of carbohydrates whose molecular structure is too large for direct entry into the bloodstream. By removing starches and sugars, dysbiosis is corrected. The result is a decrease in intestinal inflammation and healing of the intestinal tract.

Can a child remain Gluten Free and Casein Free while following the SCD ™?

The SCD ™ was originally developed as a diet for celiac disease. The SCD ™ is completely gluten free. Dr. Haas, the doctor who pioneered the SCD ™, spent many years investigating which foods people with celiac disease could tolerate. He found that they could tolerate lactose-free dairy products. So, certain dairy products, such as properly prepared homemade yogurt, are allowed on the SCD. However, some of the parents of children with ASD are reluctant to try any kind of dairy products and avoid them even though they are lactose free. There are children who remain strictly casein free while following the SCD ™ and still comsume a well-balanced diet packed with needed nutrients.

The parents who decided to try the homemade goat milk yogurt were surprised by the dramatic improvement seen in their children. Yogurt is a remarkably healing food. The decision to try the homemade goat yogurt remains completely up to the parents.

Where do I find an SCD™ cookbook that is casein free?

There is an SCD™ cookbook called SCD with Taste and Tradition that contains mostly dairy free recipes. There are more than 150 recipes in the book. Only about 12 recipes contain dairy products and they are in a separate section of the cookbook. The cookbook can be ordered from Digestive Wellness. Telephone (845) 356-4557.

Also, there are many dairy-free SCD recipes on this website.

Why is the SCD™ a good choice for a child with ASD?

Gluten sensitivity and intolerance to salicylates are symptoms of a damaged digestive system which is overrun with intestinal pathogens. When the health of the gut is restored, these symptoms disappear. It is better to cure the underlying cause than to just try to treat the symptoms. Because SCD™ reaches to the root cause of these problems by restoring the helath of the digestive system, the Specific Carbohydrate Diet™ is the optimal choice for a child with ASD.
For a more detailed explanation of why the SCD™ is the optimal choice for children with ASD, click here.

What is the protocol for implementing the SCD™ for a child with ASD?

The Elaine's Children ASD/SCD™ Protocol

1. Serve only food that is allowed on the diet. Use only foods that the child can tolerate and digest.
   When initially starting the diet, many children cannot tolerate all of the SCD legal foods. Carefully introduce permitted foods one at a time to determine if the child can tolerate the food. Add new foods slowly. A food journal is very helpful to determine if there are any reactions to new foods. Following the intro diet even for a day or two yields better long term results.

   Keep in mind that as the yeast and bacteria begin to die off, there may be an initial bad reaction to the diet.

   NEVER give a child a food which has previously caused an anaphylactic reaction.

2. Use probiotics and/or homemade goat yogurt.

   Probiotics should be introduced slowly, gradually building up the amount given. This helps prevent die-off from happening too quickly.
   Implement a dairy-free SCD™ for at least several weeks prior to the introduction of the homemade goat yogurt. This gives the gut a chance to heal. This period of time may need to be longer if there are dietary infractions. 100% compliance is necessary. When the SCD™ is started, there may be an initial bad reaction in some children due to microbial die-off. So, waiting for a few weeks before introducing the yogurt makes it possible to determine the source of the bad reaction. Keep in mind that the only yogurt that is allowed is properly prepared homemade yogurt. The yogurt should also be introduced slowly, beginning with 1 TBL per day and gradually working up to 1-2 cups per day for a child. If the yogurt is introduced too quickly, there could be a significant die-off reaction.
   For complete directions on how to make homemade goat yogurt, click here.

   Non-dairy yogurt starter and non-dairy acidophilus can be purchased from Custom Probiotics.

3. Use SCD™ legal vitamins such as Freeda (as mentioned in BTVC) or another legal brand (see Supplements page).

4. If there are still digestion problems, consider using SCD legal enzymes (see Supplements page).

5. B12 shots can also be quite helpful when dealing with intestinal problems.

Where can a complete list of legal/illegal foods based on the SCD™ be found?

Go to Elaine Gottschall's Breaking the Vicious Cycle website. The legal/illegal list can be found there as well as an enormous amount of helpful information about the SCD™.

Where can a list of legal supplements be found?

Go to SCD™ Supplement List. This list is kept as up-to-date as possible.

What online support groups exist for parents of children with ASD?

There is a Yahoo Group Pecanbread, which is a support group for parents of children following the SCD™. The majority of the children on the list have ASD, but not all. Some have GI problems, seizures or serious food allergies. It is a very supportive group made up of parents of children following the SCD.

For information on how to join the Yahoo Group Pecanbread, please click here.

作者: kwenma2 时间: 2007-2-7 06:19
标题: re:TOP 10 FAQ of SCD DI...
TOP 10 FAQ of SCD DIET (continued)

Where can SCD recipes and products be found?

Breaking the Vicious Cycle by Elaine Gottschall contains many recipes.

A compilation of recipes from members of various SCD Groups can be found at:
SCDRecipe.com

Mike Simon has a running daily "Flog" (food log) on his site as well as recipes:
Glassbird.com

The Upper Canada Lower Bowel Society (UCLBS) webpage.
UCLBS.org

Recipes from the SCD™ Organization Web Library can be accessed at:
SCDiet.org

Pictures of some fun SCD™ kid-friendly foods along with the recipes can be found at:
SCD Kid's Foods

Lucy Rosset's Book is profiled in Breaking the Vicious Cycle.
Lucy has a kitchen shop with many helpful items for following the SCD Diet.
Lucy's Kitchen Shop

Rochel Weiss's cookbook is called SCD with Taste & Tradition.
Her cookbook and other SCD™ items can be ordered from:
Digestive Wellness

J-Gourmet ready-made SCD™ products are available in Southern Ontario, Canada.
J-Gourmet
Overcoming Difficulties

Topics:

Chelation issues
Child consumed something illegal
Child is allergic (anaphylaxis) to nuts
Child is an extremely picky eater
Child is sensitive to phenols
Child is responding negatively to SCD™ or is not making any progress
Child still shows signs of malabsorption
Child takes illegal medication that has no legal version
Child won't eat foods on intro diet
Report Problems with SCD™
SCD™ Counselors to help with difficulties
School parties and other social events
Unsupportive family members and school staff

Chelation issues

We believe that the SCD™ is the best diet to follow to keep bacteria and yeast overgrowth under control.
It is well-known fact that chelating agents such as DMSA and ALA create or worsen bacterial and/or yeast overgrowths. We cannot guarantee the same degree of success with controling yeast and bacteria if a child is undergoing chelation.
Any medical treatment is a choice that must be made by the parent and the child's health care provider.
Parents need to know that by administering agents which contribute to bacterial and yeast overgrowths, that the bacteria and yeast may NOT be able to be controlled by the SCD™ alone.

Back to topics

Child consumed something illegal

It happens to the best of us. If the child regresses, go back to a more basic diet for a few days.

Sometimes a parent is giving child an illegal food by mistake. Double check the legality of the foods on this website: Breaking the Vicious Cycle.

If the child is sneaking illegal foods, investigate and try to eliminate any chance for infractions. Put the cat food up. Attempt to get any illegals out of reach, out of sight or completely out of the house. Even the school bus driver can be giving your child snacks without your knowledge. It is imperative that you have the support of anyone your child comes in regular contact with, including teachers, babysitters, and family members.

Back to topics

Child is allergic (anaphylaxis) to nuts

IMPORTANT: Foods that that cause an anaphylactic reaction (severe allergic reaction), should permanently be eliminated from the diet.

Elaine writes: “Some of the allergy testing is far from accurate. However, if you have ever had an anaphylactic reaction to a nut or another food, stay away from it forever and ever.”

It is recommended that any food the child has had a severe reaction to should be avoided.

For those who can't do any nuts, there are still many options that can be enjoyed with meat, veggies, fruit and SCD™-legal dairy. Nuts are not an essential part of this diet. The SCD™ without the use of nuts is still a very healthy diet.
Some very creative moms have come up with recipes for pancakes and cupcakes that do not use any type of flour.

Back to topics

Child is an extremely picky eater

Sometimes kids are picky because they are self-limited to foods that harm them. Sometimes kids are picky because they want sameness and routine. Sometimes kids are picky for sensory reasons. Sometimes kids are picky for who knows what reason. The good news is that plenty of picky eaters have survived and thrived on SCD™. And, even better news, some parents of picky eaters report that their children become much more adventerous after some time on SCD™. As the gut heals, cravings for harmful foods should fade and sensory issues often--though not always--fade.

Here are some tips for parents of picky eaters:

* For children who refuse all SCD™-legal foods, see the pecanbread section entitled "Transitioning a Child to SCD™" under the heading "Food Prep."

* Veggies can be hidden. The easiest to disguise are zucchini, yellow squash, and cauliflower (especially mashed and pureed.) These can be used in muffins and SCD™-legal lasagne and breads, to name a few. Some have even used baked pureed squash in muffins as a binder replacement for eggs. Greens are trickier but workable, especially in meat dishes like meat balls. Spinach chopped really, really small can look like spice--for the picky child who is not offended by spice. Creativity is the name of this game.

* Go through all the SCD™ recipes you can find. Some overtly veggie-based recipes, like squash fries, are kid favorites.

* Some parents have used ABA techniques to encourage eating new foods. For example, every new food eaten gets a reward. And maybe that reward could be a desired SCD™-legal food.

* Some parents have used the method of allowing one bite of a preferred food in exchange for one bite of a less preferred food.

* Parents of kids with sensory issues have successfully gotten their kids to eat veggies inn the following ways:

      o Pureeing a veggie into babyfood consistency.
      o Steaming miscellaneous veggies then pureeing them with salt and water to create a homemade "V8".
      o Using a turkey baster to drop a little bit of a pureed veggie into their child's mouth. The parent who used this method reported that it took a long time before it got easy. Sometimes her daughter would take only a bite then quit. Patience, patience, patience.....

* In general, with sensory-picky-eaters, parents need to experiment with different textures (though pureed seems to be a favorite), colors and smells. One mother reported that she herself is nauseated the color orange. Play detective: try to find consistencies in what your child gravitates to and what they recoil from.

* Sometimes a Sensory Integration Occupational Therapist can help with feeding challenges.

* Cook a food you want your child to have in as many different ways as possible. Ground beef, for example, can be burgers, meatloaf, a pizza topping etc.

* In homes where the entire family is follwing the SCD™, some picky eaters eventually come around when they repeatedly see a particular food enjoyed by everybody else. Reverse psychology often works well in this situation: don't care one bit whether or not your child joins in. The food is for everybody else, not your picky eater.

In general, we cannot control what our children put in their mouths, chew and swallow. And we don't want to be forcing anything in. But we can, for the most part, control what they don't put in their mouths. On close inspection, you might find that, eating SCD™, your confirmed picky eater is taking in a more balanced diet than you thought.

For a behavioral approach to getting your picky eater to try new foods, please read this article from TACA (Talk About Curing Autism): Picky Kids, Eating, And Autism Creative ways for healthy nutrition by Lisa Ackerman.

作者: kwenma2 时间: 2007-2-7 06:20
标题: re:Child is sensitive t...
Child is sensitive to phenols

Many parents report that their children have problems with foods that are high in phenols. Parents report the need to follow the Feingold diet. The Feingold diet protocol removes foods high in salicylates. After a period of 4-6 weeks, the non-artificial foods (fruits and vegetables) should be able to be added back into the diet. This does not seem to be the case for ASD kids who follow the Feingold diet. The foods are not able to be reintroduced as the protocol suggests.
The underlying problem with phenol sensitivity seen in kids with ASD may very well be leaky gut syndrome. It has been seen numerous times that once kids follow the SCD™ and their GI tracts begin to heal, they are able to eat phenolic foods that were previously not tolerated.
When beginning the SCD™, it is not required to eat the foods that are high in phenols, but in time, it may be possible to resume eating the foods that are high in phenols with no negative reactions.
A child may also benefit from using an enzyme such as No Fenol to help with highly phenolic foods.

Back to topics

Child is responding negatively to SCD or is not making any progress

It is not unusual for kids to have some negative reactions at first as bacterial overgrowth and yeast “die off”, releasing toxins. This could manifest itself as behavioral symptoms (stimming, tantrums, etc.) or physical symptoms such as nausea, headache, or even fever. Give child lots of love during this difficult time. Try epsom salt baths and activated charcoal supplements. Check out the Initial bad reactions link for more details.

Keeping a food journal often helps determine if certain legal foods are not tolerated. Until some gut healing takes place, some of the SCD™ legal foods may need to be avoided. If this is the case there are often legal substitutes available. Examples: For those that don't tolerate almond flour, there is pecan or filbert flour. For those children that don't tolerate eggs at the beginning there are egg-free recipes (see Food Preparation page). Manufactured foods that have not been listed as legal either in BTVC or on Elaine’s website: Breaking the Vicious Cycle could possibly have illegal ingredients and might be interfering with progress. Double check all the products you are using. If you are not seeing as much improvement as you were hoping to, please pull all possible illegals for a time and see if that makes a difference.

Also, take a close look at the supplements your child is receiving. There may be illegal ingredients which are causing problems. Please check the SCD™ Supplement List to see if you can find a suitable legal supplement to replace any illegal ones your child might be currently taking.

Back to topics

Child still shows signs of malabsorption

If you suspect continuing malabsorbtion issues (undigested food in stools, etc.), your child may benefit from digestive enzyme supplements.

Some legal enzymes by brand name:

Peptizyde by Houston Nutraceuticals, Inc.
No Fenol by Houston Nutraceuticals, Inc.
H N-Zyme Prime by Houston Nutraceuticals, Inc.

Digest Gold by Enzymedica
Ultra-zyme Plus by Thorp Nutrition
Vitase Digestion Formula

EnZymAid by Kirkman Labs
Enzym-Complete/DPP IV by Kirkman Labs
Multi-Enzyme Formula by Kirkman Labs
Peptidase Complete by Kirkman Labs

Back to topics

Child takes illegal medication that has no legal version

If your child is taking prescription medication that contains illegals, first check with your pharmacist to find out if the med might possibly be available in another form that might be legal. Some medications can be specially compounded. If not, and the medication is essential, continue giving it and simply do the best you can in every other aspect of the diet. You may find that some prescriptions, such as antacids or laxatives, may no longer be needed once the child is on SCD™ but this decision is up to you and your physician. Do not attempt to stop any medication for seizures or for mood or behavior disorders without discussing the preferred protocol for weaning the drug with your child’s doctor.

Back to topics

Child won't eat foods on intro diet

Think like a kid for the intro. Here’s a few suggestions:
For the homemade gelatin - cut it into kid shapes.
If he/she won't eat eggs you could mix them, cook them flat & then cut them into more shapes.
Try apple cider or grape juice (1/2 juice, 1/2 water) frozen into popsicles.
The broiled beef patty can instead be rolled into little kid-size meatballs.

Unless symptoms are severe (cramping and diarrhea), one or two days on the intro diet are sufficient. If your child refuses to eat the intro diet foods, simply do the best you can to provide a very simple diet of easily digestible SCD™ legal foods. Get as close as you can to the intro diet with just a few basic foods you know your child can tolerate and will eat. After that, introduce new foods slowly. You may be able to return to a stricter intro diet later for a day or two to jump-start further progress.

Back to topics

Report Problems with SCD

If you are having problems with SCD™, please go to the Problem Report Form. Follow the directions on the page to submit the report.

Back to topics

SCD™ Counselors to help with difficulties

If you are interested in a private SCD™ Counselor to help with difficulties, please contact the webmaster to obtain a list of private counselors.

Back to topics

School parties and other social events

These events are most difficult to deal with during the beginning stages of the diet. Once nut flours and baked good can be well tolerated, there are many options for providing yummy treats for these occasions. There are recipes for cookies, cakes and other treats on the Food Preparation page.

Some suggestions for fun treats that do not contain nuts would be: homemade gelatin cut into shapes with cookie cutters, homemade popsicles, and fruit salad.

Back to topics

Unsupportive family members and school staff

Sharing a brief overview of the science behind the SCD™ and a list of legal/illegal foods could help gain the support of family and school staff. Oftentimes people are more willing to be cooperative with special dietary restrictions when they understand that there is a real reason for the diet.
A copy of the SCD Autism Summary could be printed out and shared with family members and school staff.

Back to topics

Pecanbread.com

Initial Bad Reactions to the SCD

Elaine writes: "There is no way that we can judge how beneficial this diet will be during the first few days. Some children do well even the first week, but others will go through a period of adjustment and what some call "detoxification". Please remember that this diet is creating PROFOUND CHANGES in the intestines. It is readjusting the entire population of yeast and bacteria beyond what anyone understands fully at this time. But the results have been excellent and that is what SCD is about: Results."
"During the first week or so, it often happens that things look a bit worse. What frightens many moms and dads is that the color of the stool can become bizarre shades of green and yellow. This color change is a good sign: bacterial metabolism is CHANGING. The change is affecting the bile salts and therefore affects the color of the stool."

These inital reactions may include a worsening of behavior, GI symptoms and mood swings. Some children experience and increase in the size of their bellies. There might also be an increase in "stimming", hyperactivity or agression. This is an indication that the diet is beginning to work and there is a "die off" reaction taking place.

If my child does not have a bad initial reaction to the diet, will he still see results with this diet?

Many times, children show no initial bad reaction, yet see great results. Some children show immediate positive results. Every child is different.

My child is GFCFSF and sugar free. Could my child still have an initial bad reaction to the SCD?

It is possible because rice and potatoes supply plenty of food for the bad microbes (yeast/bacteria).

How can I make my child feel better during the die off period?

Give lots of love.

Activated charcoal for a brief time. It should not be taken with meals.

Epsom salt baths have helped relieve some symptoms of die off for some children.
Start with 1 cup of epsom salts in waist deep water and soak for at least 20 minutes.
If this is tolerated go up to 2 cps of slats per bath.
If this is not well tolerated, cut the amount to 1/2 cup per bath or even less.
Find the amount that can be tolerated. Hyperness, irritability, and/or whining can indicate that a person is detoxing too fast.

作者: kwenma2 时间: 2007-2-7 06:25
标题: re:实在对不起，只有英语版本的SCD饮食疗法...
实在对不起，只有英语版本的SCD饮食疗法。如果哪位热心家长能翻译出来，还有
http://www.breakingtheviciouscycle.info/
上的合格和不合格的食物，那么会填补中文关于SCD疗法的空白(我没看见过SCD的中文
版本介绍。如果有，那更好。也可以将它贴出来)。

作者: heping_zhu 时间: 2007-2-8 17:50
标题: re:kwenma:该禁食文章还没有细看。...
kwenma:
该禁食文章还没有细看。
这几天在赶两项课题。如果有其他家长有空，自然好；
没有其他家长有空，只有等我忙过这阵后再帮你译吧。不过禁食这个topic我也不熟悉。

作者: kwenma2 时间: 2007-2-9 00:44
标题: re:儿子从星期一开始眼睛放光，有神。对视也好...
儿子从星期一开始眼睛放光，有神。对视也好些了。但他玩时还是太专注于自己的活
动。最近一周可以认识大概10个英语单词了。而且还要将单词拼出来。开始喜欢按
照虚线描绘的数字填写数字，希望这是他开始写字的第一步。到目前为止，可以说
出家里8个人的名字了(问答形：“爸爸叫什么？”，答：“MM”)，数数可以数到
30 。

最近一周开始在家里作音乐听觉统合训练。用的是“Listenning with the whole body ”的方法。
特殊的耳机和CD碟子。for details:
http://www.vitallinks.net/

作者: kwenma2 时间: 2007-2-14 01:06
标题: re:这一周以来，小孩变得听话多了。...
这一周以来，小孩变得听话多了。

去超市购物，看见他走出几米远后，我说“爸爸妈妈要回家了！”，他立马就跑回
来牵着我们的手；

从来给他剪头是个大难题，只能等他睡着后用剪刀给他剪。周末如法炮制。不想刚
剪了一半，他醒了，把我们吓得一身汗。这下完了，整个一个阴阳头。于是我试着
说：“不动，妈妈剪头”。剪下一点头发就给他看，就这样他一动不动地让我完成
了任务。然后拿镜子给他看，说“剃了一个小光头”，教他摸摸头。过了一会，奶
奶过来，我说剃了一个小光头，没想到他还像模像样地摸了摸头。

一个月前，他开始让我给他剪指甲了。以前是碰都碰不得，只好在他睡觉时剪。现
在还可用剪指甲的机会跟他地板时光一把。

周末去看医生，医生要号脉，开始不太愿意，经我说了后也就同意了。医生至少在
他每只手上号了20秒，他都耐心等着。医生问他几岁了，他说“两岁”。医生问他
叫什么名字，他也说对了，还接着拼出了单词。把我们都逗乐了。我们一个多小时
都跟医生谈话，他虽然说了几次“坐爸爸车车回家”，但我说“等一会”他也没有
烦躁，耐心地等我们(有时玩一下医生办公室的玩具)。医生都说他很乖，能有耐心
配合我们了。

最令我高兴的是前天我看见了一种我从来没在他脸上看见的表情。他想看DORA 的DVD，
就跑到架子上拿了一张DVD，於是我问他是不是DORA，他侧过头来看着我，眼睛流
露出一种复杂的表情：高兴，但又好像在问“妈妈，你说呢？”，而且还有“你说
错了”的表情，然后他笑着跑过来对我说“ELMO”。原来是另外一张DVD。总之我第
一次感觉到了他的调皮的神情。

昨天晚上我去开会，10点半才到家。平时都是我哄他入睡。昨天临时换成爸爸。据
他爸爸说，他躺在床上，用一种有点委屈的又有点想哭的声调说“坐爸爸车车接妈
妈”。看来他开始知道想妈妈了！他爸爸说上次我去开地板时光的年会，走了好几
天他也没有任何感觉。相比起来，是有一些进步了。今天早上一见我，高兴的拥抱
我，抱玩了一个后，又主动拥抱了一次。可见他好高兴！

另外觉得你问他问题时，他的反应快些了。

在这7-8天中，只有一个晚上和第二天上午眼神变得呆。其它时候的眼神是闪光发亮。
我怀疑是如下原因：星期四下午我带他去做地板时光，进那栋楼时很大一股油漆味，
原来是一家公司在装修。冬天窗子又闭着，所以气味透不出去。晚上回来他就有点
呆，第二天上午更呆。下午才好转。我不知道这是不是巧合？他反应这么强烈！他
的食物我们没有变动。如果是，家长们一定注意不要让孩子离得太近！

作者: kwenma2 时间: 2007-3-6 22:38
标题: re:最近两周忙於孩子的胃肠(endosc...

最近两周忙於孩子的胃肠(endoscopy & colonscopy)测试，先是停消化酶，
然后又停了两天所有的药，饿肚清肠(半天只喝果汁)一天，于二月二十二
号作了测试。当天初步结果有十二指肠溃疡。
结果令人吃惊！全面结果过两周才能出来。

最近有一周(在停消化酶)前眼光发亮，状态极佳。停消化酶后眼神趋於一般。测试
这几天状态不太好(注意力不好，眼神不好)。当然跟测试和抽血有关。经过几天的
恢复，上课有好多了，至少恢复到测试前的水准。但还是没有最佳状态。

不过这两周语言也还有进步。

最近喜欢吃兰瓜，那天吃完后，居然端起碗，站在自己的板凳上说“我要吃兰瓜！”。
孩子从来对吃的没有任何兴趣，你给他吃啥就吃啥，从来不主动要吃的。从这点说
就很有进步。还有一天自己吃完了还跑到大人的菜盘子里主动挑花菜吃。不断说
“MORE PLEASE”。

前些天突然对他的小三轮车感兴趣，在家里骑着骑着，便想骑上楼。我便告诉他BIKE不
能上楼，你该上楼洗澡了。他恋恋不舍地跟我上楼，正好看见爸爸也上楼，於是他
说“爸爸下楼”。我们不知他要爸爸干什么，於是爸爸下楼。他马上说“爸爸拿BIKE！”
啊，原来如此！看来小脑壳还在动。

前天语言老师上课用了彩笔，他很喜欢。上课时主动说“I WANT PURPLE MARKER！”
该老师一周没来，直说他说话有进步。老师来时，他高兴的不得了，早早地在窗子
边等，直到老师进门，很高兴给老师打招呼“HI DAINE”。然后我悄悄告诉他给老
师放好凳子，他咚咚地跑过去给老师放好凳子，老师好高兴。

当天晚上，他拿着家里的MARKER在纸上涂鸦，我在跟他爸爸说话，突然他叫我“妈
妈，一五”，他看着我笑(有一种得意的神情)，手指着纸，我“哇”的一声尖叫出
来。原来他自己第一次写出了“15”的阿拉伯数字！於是赶紧教他写“2” “3”，
一下就学会自己写了。以前只是让他连点组成的阿拉伯数字。到睡觉时已能独立写
“1”“2”“3”“5”“8”了。

昨天去一个新的语言老师家，也叫DIANE。DIANE有20多年跟ASD小孩打交道的经验。
她不仅是语言专家，ABA和FLOORTIME她也通。总之感觉她专业素质很强，比起目前
我们的其它4个语言老师而言，综合素质加经验数第一。她一开始就不断的测试孩子，
想看看他的水平。跟孩子玩完后，我立马叫老公跟她约长期的服务。最近几个月的
经验告诉我，要找到一个好的老师太难了，有就一定要抓紧。虽然她费用高$100USD/每
小时。好在我们有好的保险，能报70%。孩子和她的时间安排都很紧，所以很难找到
合适的时间。她初步答应周日提供1小时语言训练。
她说我们孩子属於高功能，有较强的模仿力(也就最近我发现你说啥，小孩愿意跟你
说，而且反应快)，能说很多东西(各种形状，颜色，动物。。。)，而且关键是功
能性语言(去了不高兴，指着门直叫“MOMMY OPEN DOOR”。遇到困难便说“MOMMY
HELP ME”)好，而且孩子SMART。所以她愿意开个例外，周末给孩子上课。当然她指
出孩子的弱点：玩东西太专注于物体，需要老师插入才能将注意力转移过来，眼神
对视要改进，等等。我觉得她说到我心里去了，抓问题很准。看来是经验丰富。

孩子现在一周有40多个小时的个训(ABA 25小时，地板时光7小时，语言4个小时，
感统/幼儿物理理疗5个小时，每周还去游泳两次)，安排很紧。一周要见的个训老师
就超过15个。现在他能知道星期几哪个老师要来，要坐爸/妈的车去找那个老师上课。

昨天去上地板时光课，进门时我说“敲门”。他便一边敲门一边说“KNOCK KNOCK”。
自己打开门跑过去，奔到老师那里，一边叫“DEBBIE HUG(拥抱)”。
跟老师拥抱后，主动出手牵老师的手。上完课后，又主动出手牵老师的手说“DEBBIE
回家家吃饭”。DEBBIE也说他语言有进步(因为DEBBIE有两周没见到他了)。

昨天最好笑的是回家后在饭桌上我给大家讲他在DEBBIE处的表现，他时不时的看我
两眼。然后我们问他“妈妈在讲哪个？”他挺认真的神情说“妈妈在讲宝宝！”逗
得我们大笑！看来他听得懂你讲的事了。现在你问他，今天我们去找了哪个老师上
课，刚才我们去干什么了(游泳)，他也能够回答了。最近我们在给他加时间的概念
(星期，上午，下午，晚上，等等)。

不好的方面，固定模式行为严重。不准爷爷关门(要妈妈关(妈妈在时))，打微波炉等
等。下周去参加ABA协会办的针对行为问题方面的会议，希望有所斩获。

作者: 加加爸爸 时间: 2007-3-7 00:29
标题: re:孩子越来越进步，真好。我的孩子有一个...
孩子越来越进步，真好。
我的孩子有一个阶段就和你孩子现在这样，当时我依然执拗地将他放在全日制ABA机构里面，结果将近三个月的时间孩子几乎没有进步而且抵触情绪严重。
后来改变策略，半天正常幼儿园半天训练，孩子飞速前进。
孩子到了这一步，我感觉他可以从正常孩子身上学到的东西已经远比个训所学到的多得多。
不可否认，认知方面的提高的确是个训效果好，但是社交方面呢？因为我们的孩子就是要学习正常孩子的说话，正常孩子的思维，这点个训老师是办不到的。
我的孩子目前最盼望的课程就是每周六的SHANE ENGLISH和每周日的GYMBOREE PLAY&ART&MUSIC。
仅供参考。。。

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